Publications and Resources
Measures
Prior to the use/translation of any REACH measure please read this Policy on using REACH group measures
The following measures, developed by our group, are available for researchers to download and use:
- Memory Awareness Rating Scale (MARS) (docx, 57kb)
- AwareCare (PDF, 83kb)
- AwareCare observation measure: German version (docx, 29kb) Translated by Günther Robl, Seniorenpflegeheim St. Bilhildis, Mainz, Deutschland
- AwareCare observation measure: Dutch version (PDF, 750kb) Translated by Jenny T van der Steen at Leiden University Medical Center, Giselka Gutschow, and Maggie Oattes.
- The Bangor Goal-Setting Interview Version 2.2 Manual (PDF, 3.22MB)
- The Bangor Goal-Setting Interview - Short Version (PDF, 834kb)
- The Bangor Goal-Setting Interview – Short version: Norwegian (PDF, 762kb) Translated by colleagues at the Norwegian National Centre for Ageing and Health
- The Representations and Adjustment Index (RADIX) (PDF, 91kb)
- The Representations and Adjustment Index (RADIX): Italian version (PDF, 635kb) Translated by Samantha Pradelli, who leads the mental health unit for older people at the ULSS 7 (Italy); Livia Wright, who is a Psychologist Psychotherapist within the NOVILUNIO team, and Serena Sabatini.
- The Representations and Adjustment Index (RADIX): Spanish version (PDF, 227kb) Translated by Ubiquos, Spain funded by Roche Farma S.A. For more details about this translation see this research article.
- My Life Questionnaire (PDF, 651kb)
Publications
Please email Dr Anthony Martyr for article requests.
Alexander, C.M., Martyr, A., & Clare, L. (2024). The Healthcare Awareness Profile Interview: a new evidence-based brief clinical tool to assess awareness in people with dementia. Neuropsychological Rehabilitation. Advance online publication. doi: 10.1080/09602011.2024.2337152 (open access)
Clare, L. (2024). What is dementia? Jornal Brasileiro de Psiquiatria, 73(1), e20230100. doi: 10.1590/0047-2085-2023-0100 (open access)
Collins, R., Dawson, E., Pentecost, C., Stapley, S., Quinn, C., Charlwood, C., Allan, L., Victor, C., & Clare, L. (2023). Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort. International Journal of Care and Caring. Advance online publication. doi: 10.1332/239788223X16893442145108
Page, S.J., Connell, J., Price, S., Owen, S., Ledingham, K., & Clare, L. (2023). Operationalizing transformative tourism: Creating dementia-friendly outdoor and nature-based visitor experiences. Journal of Travel Research. Advance online publication. doi: 10.1177/00472875231217735 (open access)
Sabatini, S., Martyr, A., Gamble, L.D., Matthews, F.E., Thom, J.M., Henderson, C., Allan, L., Pentecost, C., Quinn, C., Hunt, A., & Clare, L. on behalf of the IDEAL programme team. (2024). Identifying predictors of transition to a care home for people with dementia: findings from the IDEAL programme. Aging & Mental Health. Advance online publication. doi: 10.1080/13607863.2024.2383367
Stapley, S., Pentecost, C., Collins, R., Quinn, C., Dawson, E., Morris, R.G., Sabatini, S., Thom, J.M., & Clare, L. (2023). Living with dementia during the COVID-19 pandemic: insights into identity from the IDEAL cohort. Ageing & Society. Advance online publication. doi: 10.1017/S0144686X22001350 (open access)
Stapley, S., Pentecost, C., Hillman, A., Jones, I.R., Morris, R.G., Quinn, C., Ravi, M., Thom, J.M., & Clare, L. (in press). Continuity, change and ‘living well’ for older people with dementia: longitudinal qualitative findings from the IDEAL cohort study. Ageing & Society.
Stapley, S., Wheat, H., Owen, S., Ledingham, K., Price, S., Connell, J., Page, S., Quinn, C., Opdebeeck, C., Victor, C., & Clare, L. (in press). The dementia-nature-inclusivity nexus and the needs of people affected by dementia. Ageing & Society.
Charlwood, C., & Clare, L. (2024). Doing dementia differently: A range of co-produced resources from the IDEAL programme. FPOP Bulletin: Psychology of Older People, 165(1), 23-27. doi: 10.53841/bpsfpop.2024.1.165.23
Clare, L., Gamble, L.D., Martyr, A., Henderson, C., Knapp, M., & Matthews, F.E. on behalf of the IDEAL study team. (2024). Living alone with mild-to-moderate dementia over a two-year period: longitudinal findings from the IDEAL cohort. The American Journal of Geriatric Psychiatry, 32(11), 1309-1321. doi: 10.1016/j.jagp.2024.05.012 (open access)
Collins, R., Martyr, A., Hunt, A., Quinn, C., Pentecost, C., Hughes, J.C., & Clare, L. (2024). Methods and approaches to facilitate inclusion of the views, perspectives, and preferences of people with moderate-to-severe dementia in research: a narrative systematic review. International Journal of Older People Nursing, 19(1), e12594. doi: 10.1111/opn.12594 (open access)
Hansen, A., Eramudugolla, R., Kiely, K.M., Delbaere, K., Bedard, M., Brown, J., Clare, L., Lung, T., Wood, J.M., & Anstey, K.J. (2024). Protocol for the evaluation of the effectiveness of three different interventions on older driver safety over a 12-month period. BMJ Open, 14(8), e087137. doi: 10.1136/bmjopen-2024-087137 (open access)
Martyr, A., Gamble, L.D., Hunt, A., Quinn, C., Morris, R.G., Henderson, C., Allan, L., Opdebeeck, C., Charlwood, C., Jones, R.W., Pentecost, C., Kopelman, M.D., Thom, J.M., Matthews, F.E., & Clare, L. (2024). Differences in trajectories of quality of life according to type of dementia: 6-year longitudinal findings from the IDEAL programme. BMC Medicine, 22(1), 265. doi: 10.1186/s12916-024-03492-y
Martyr, A., Nelis, S.M., Morris, R.G., Marková, I.S., Roth, I., Woods, R.T., & Clare, L. (2024). Exploring longitudinal changes in implicit awareness of dementia: an investigation of the emotional Stroop effect in healthy ageing and mild dementia. Journal of Neuropsychology, 18(2), 226-238 doi: 10.1111/jnp.12344 (open access)
Martyr, A., Ravi, M., Gamble, L.D., Morris, R.G., Rusted, J.M., Pentecost, C., Matthews, F. E., & Clare, L. on behalf of the IDEAL study team. (2024). Trajectories of cognitive and perceived functional decline in people with dementia. Findings from the IDEAL programme. Alzheimer's & Dementia, 20(1), 410-420. doi: 10.1002/alz.13448 (open access)
McDermid, J., Henley, W., Corbett, A., Williams, G., Fossey, J., Clare, L., Fox, C., Aarslad, D., Khan, Z., Soto, M., Woodward-Carlton, B., Moniz-Cook, E., Cummings, J., Sweetnam, A., Chan, X., Lawrence, M., & Ballard, C. on behalf of the iWHELD study group. (2024). Impact of the iWHELD digital person-centered care program on quality of life, agitation and psychotropic medications in people with dementia living in nursing homes during the COVID-19 pandemic: a randomized controlled trial. Alzheimer's & Dementia, 21(3), 1797-1806. doi: 10.1002/alz.13582 (open access)
Owen, S., Page, S., Connell, J., Ledingham, K., Price, S., Quinn, C., Victor, C., & Clare, L. (2024). Embodied leisure experiences of nature-based activities for people living with dementia. Dementia, 23(7), 1081-1102. https://doi.org/10.1177/14713012241262384 (open access)
Quinn, C., Gamble, L.D., Morris, R.G., Pentecost, C., Rusted, J.M., & Clare, L. on behalf of the IDEAL programme team. (2024). Longitudinal trajectories of stress and positive aspects of dementia caregiving: Findings from the IDEAL programme. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 79(8), gbae097. doi: 10.1093/geronb/gbae097 (open access)
Quinn, C., Toms, G., Rippon, I., Nelis, S.M., Henderson, C., Morris, R.G., Rusted, J.M., Thom, J.M., van den Heuvel, E.A., Victor, C., & Clare, L., on behalf of the IDEAL programme team. (2024). Positive experiences in dementia care-giving: findings from the IDEAL programme. Ageing & Society, 44(5), 1010-1030. doi: 10.1017/S0144686X22000526 (open access)
Rippon, I., Victor, C.R., Martyr, A., Matthews, F.E., Quinn, C., Rusted, J.M., Jones, R.W., Collins, R., van Horik, J., Pentecost, C., Allan, L., & Clare, L. on behalf of the IDEAL programme team. (2024). Dyadic perspectives on loneliness and social isolation among people with dementia and spousal carers: findings from the IDEAL programme. Aging & Mental Health, 28(6), 891-899. doi: 10.1017/S0144686X22000526 (open access)
Sabatini, S., Martyr, A., Hunt, A., Gamble, L.D., Matthews, F.E., Thom, J.M., Jones, R.W., Allan, L., Knapp, M., Quinn, C., Victor, C., Pentecost, C., Rusted, J.M., Morris, R.G., & Clare, L. (2024). Health conditions in spousal caregivers of people with dementia and their relationships with stress, caregiving experiences, and social networks: longitudinal findings from the IDEAL programme. BMC Geriatrics, 24(1), 171. doi: 10.1186/s12877-024-04707-w (open access)
Sabatini, S., Martyr, A., Hunt, A., Gamble, L.D., Matthews, F.E., Thom, J.M., Jones, R.W., Allan, L., Knapp, M., Victor, C., Pentecost, C., Rusted, J.M., Morris, R.G., & Clare, L. (2024). Comorbid health conditions and their impact on social isolation, loneliness, quality of life, and well-being in people with dementia: longitudinal findings from the IDEAL programme. BMC Geriatrics, 24(1), 23. doi: 10.1186/s12877-023-04601-x (open access)
Sabatini, S., Turner, S.G., & Clare, L. (2024). Felt age and its psychological correlates in dementia spousal caregiving dyads: findings from the IDEAL programme. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences. 79(8), gbae105. doi: 10.1093/geronb/gbae105
Victor, C.R., Gamble, L.D., Pentecost, C., Quinn, C., Charlwood, C., Matthews, F.E., & Clare, L. (2024). Living well with dementia: an exploratory matched analysis of minority ethnic and white people with dementia and carers participating in the IDEAL programme. International Journal of Geriatric Psychiatry, 39(1), e6048. doi: 10.1002/gps.6048 (open access)
Victor, C., van den Heuvel, E., Pentecost, C., Quinn, C., Charlwood, C., & Clare, L. (2024). Perspectives of minority ethnic caregivers of people with dementia interviewed as part of the IDEAL programme. Health and Social Care in the Community, 2024(1), 8732644. doi: 10.1155/2024/8732644 (open access)
Victor, C.R., van den Heuvel, E., Pentecost, C., Quinn, C., Charlwood, C., & Clare, L. (2024). Understanding dementia in minority ethnic communities: the perspectives of key stakeholders interviewed as part of the IDEAL programme. Dementia, 23(7), 1172-1182. https://doi.org/10.1177/14713012241272817 (open access)
Alexander, C.M., Martyr, A., Gamble, L.D., Quinn, C., Pentecost, C., Morris, R.G., & Clare, L. on behalf of the IDEAL study team. (2023). Dyadic influences on awareness of condition in people with dementia: Findings from the IDEAL cohort. Frontiers in Aging Neuroscience, 15(1), 1277336. doi: 10.3389/fnagi.2023.1277336 (open access)
Allan, L., O’Connell, A., Raghuraman, S., Bingham, A., Laverick, A., Chandler, K., Connors, J., Jones, B., Um, J., Morgan-Trimmer, S., Harwood, R.H., Goodwin, V.A., Ukoumunne, O.C., Hawton, A., Anderson, R., Jackson, T., MacLullich, A.M.J., Richardson, S., Davis, D., Collier, L., Strain, W.D., Litherland, R., Glasby, J., & Clare, L. (2023). A rehabilitation intervention to improve recovery after an episode of delirium in adults over 65 years (RecoverED): study protocol for a multi-centre, single-arm feasibility study. Pilot and Feasibility Studies, 9(1), 162. doi: 10.1186/s40814-023-01387-y (open access)
Batchelor, A., Bingham, J., Burton, J., Charlwood, C., Cheeseman, M., Litherland, R., Norris, C., Oliver, K., Pentecost, C., Scott, D., & Ward, J. (2023). The IDEAL Living with Dementia Toolkit: living your life with hope. Journal of Dementia Care, 31(1), 20-24.
Burbaite, A., Leeworthy, S., Hirst, L., Mioshi, E., Clare, L., & Ahmed, S. (2023). Suitability of memory aids and strategies for people with posterior cortical atrophy: protocol for a scoping review. Systematic Reviews, 12(1), 58. doi: 10.1186/s13643-023-02187-4 (open access)
Clare, L., Kudlicka, A., Collins, R., Evans, S., Pool, J., Henderson, C., Knapp, M., Litherland, R., Oyebode, J., & Woods, R.T. (2023). Implementing a home-based personalised cognitive rehabilitation intervention for people with mild-to-moderate dementia: GREAT into Practice. BMC Geriatrics, 23(1), 93. doi: 10.1186/s12877-022-03705-0 (open access)
Clare, L., Pentecost, C., Collins, R., Martyr, A., Litherland, R., Morris, R.G., Quinn, C., Gamble, L.D., Sabatini, S., & Victor, C. (2023). Evaluating ‘living well’ with mild-to-moderate dementia: co-production and validation of the IDEAL My Life Questionnaire. Dementia, 22(7), 1548-1566. doi: 10.1177/14713012231188502 (open access)
Collins, R., Owen, S., Opdebeeck, C., Ledingham, K., Connell, J., Quinn, C.,S.,P., & Clare, L. (2023). Provision of outdoor nature-based activity for older people with cognitive impairment: a scoping review from the ENLIVEN project. Health & Social Care in the Community, 2023(1), Article ID 4574072. doi: 10.1155/2023/4574072 (open access)
Dawson, E., Collins, R., Pentecost, C., Stapley, S., Quinn, C., Charlwood, C., Victor, C., & Clare, L. (2023). Navigating the coronavirus pandemic two years on: Experiences of people with dementia from the British IDEAL cohort. Dementia, 22(4), 760-782. doi: 10.1177/14713012231158215 (open access)
Henley, J., Hillman, A., Jones, I.R., Woods, B., MacLeod, C.A., Pentecost, C., & Clare, L. (2023). 'We're happy as we are': the experience of living with possible undiagnosed dementia. Ageing & Society, 43(9), 2041-2066. doi: 10.1017/S0144686X21001495
Hillman, A., Jones, I. R., Quinn, C., Pentecost, C., Stapley, S., Charlwood, C., & Clare, L. (2023). The precariousness of living with, and caring for people with, dementia: Insights from the IDEAL programme. Social Science and Medicine, 331(1), 116098. doi: 10.1016/j.socscimed.2023.116098 (open access)
Hunt, A., Martyr, A., Gamble, L.D., Morris, R.G., Thom, J.M., Pentecost, C., & Clare, L. (2023). The associations between personality traits and quality of life, satisfaction with life, and well-being over time in people with dementia and their caregivers: findings from the IDEAL programme. BMC Geriatrics, 23(1), 354. doi: 10.1186/s12877-023-04075-x (open access)
Kudlicka, A., Martyr, A., Bahar-Fuchs, A., Sabates, J., Woods, B., & Clare, L. (2023). Cognitive rehabilitation for people with mild to moderate dementia. Cochrane Database of Systematic Reviews 2023. Issue 6, Art. No.:CD013388. doi: 10.1002/14651858.CD013388.pub2
McDermid, J., Ballard, C., Khan, Z., Aarslad, D., Fox, C., Fossey, J., Clare, L., Moniz-Cook, E.D., Soto-Martin, M., Sweetman, A., Mills, K., Cummings, J., & Corbett, A. (2023). Impact of the Covid-19 pandemic on neuropsychiatric symptoms and antipsychotic prescribing for people with dementia in nursing home settings. International Journal of Geriatric Psychiatry, 38(1), e5878. doi: 10.1002/gps.5878 (open access)
McMaster, M., Kim, S., Clare, L., Torres, S.J., Cherbuin, N., & Anstey, K.J. (2023). The feasibility of a multidomain dementia risk reduction randomised controlled trial for people experiencing cognitive decline: the Body, Brain, Life for Cognitive Decline (BBL-CD). Aging & Mental Health, 27(11), 2111-2119. doi: 10.1080/13607863.2023.2190083 (open access)
O’Rourke, G., Pentecost, C., van den Heuvel, E.A., Victor, C., Quinn, C., Hillman, A., Litherland, R., & Clare, L. (2023). Living with dementia under COVID-19 restrictions: coping and support needs among people with dementia and carers from the IDEAL cohort. Ageing & Society, 43(10), 2424-2446. doi: 10.1017/S0144686X21001719 (open access)
Sabatini, S., Dritschel, B., Rupprecht, F.S., Ukoumunne, O.C., Ballard, C., Brooker, H., Corbett, A., & Clare, L. (2023). Rumination moderates the longitudinal associations of awareness of age-related change with depressive and anxiety symptoms. Aging & Mental Health, 27(9), 1711-1719. doi: 10.1080/13607863.2023.2176820
Sabatini, S., Martyr, A., Gamble, L.D., Collins, R., Matthews, F.E., Morris, R.G., Rusted, J.M., Pentecost, C., Quinn, C., & Clare, L. on behalf of the IDEAL study team. (2023). Longitudinal predictors of informant-rated involvement of people with dementia in everyday decision-making: Findings from the IDEAL program. Journal of Applied Gerontology, 42(2), 290-301. doi: 10.1177/07334648221128558 (open access)
Sabatini, S., Martyr, A., Gamble, L.D., Jones, I.R., Collins, R., Matthews, F.E., Knapp, M., Thom, J.M., Henderson, C., Victor, C., Pentecost, C., & Clare, L. (2023). Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the IDEAL cohort. Social Science & Medicine, 317(1), 115603. doi: 10.1016/j.socscimed.2022.115603 (open access)
Sabatini, S., Martyr, A., Gamble, L.D., Jones, I.R., Collins, R., Matthews, F.E., Victor, C., Quinn, C., Pentecost, C., Thom, J.M., & Clare, L. (2023). Profiles of social, cultural, and economic capital as longitudinal predictors of stress, positive experiences of caring, and depression among carers of people with dementia: findings from the IDEAL programme. Aging & Mental Health, 27(7), 1335-1343. doi: 10.1080/13607863.2022.2098920
Sabatini, S., Ukoumunne, O.C., Ballard, C., Collins, R., Kim, S., Corbett, A., Aarslad, D., Hampshire, A., Brooker, H., & Clare, L. (2023). What does feeling younger or older than one’s chronological age mean to men and women? Qualitative and quantitative findings from the PROTECT study. Psychology and Health, 38(3), 324-347. doi: 10.1080/08870446.2021.1960989 (open access)
Sabatini, S., Wahl, H.W., Diehl, M., Clare, L., Ballard, C., Brooker, H., Corbett, A., Hampshire, A., & Stephan, B.C.M. (2023). Testing bidirectionality in associations of age-related gains and losses with physical, mental and cognitive functioning across one year: the role of age. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 78(12), 2026-2036. doi: 10.1093/geronb/gbad150 (open access)
Abbott, R.A., Rogers, M., Gwernan-Jones, R., Lourida, I., Green, C., Ball, S., Hemsley, A., Cheeseman, D., Clare, L., Moore, D., Hussey, C., Coxon, G., Llewellyn, D.J., Naldrett, T., & Thompson Coon, J. (2022). New horizons for caring for people with dementia in hospital: the DEMENTIA CARE pointers for service change. Age and Ageing, 51(9), afac190. doi: 10.1093/ageing/afac190 (open access)
Alexander, C.M., Martyr, A., & Clare, L. (2022). Changes in awareness of condition in people with mild-to-moderate dementia: longitudinal findings from the IDEAL cohort. International Journal of Geriatric Psychiatry, 37. doi: 10.1002/gps.5702 (open access)
Choi, A., Martyr, A., Clare, L., Fossey, J., Khan, Z., McDermid, J., & Ballard, C. (2022). Impact of psychotic symptoms and concurrent neuropsychiatric symptoms on the quality of life of people with dementia living in nursing homes. Journal of the American Medical Directors Association, 23(9), 1474-1479. doi: 10.1037/pag0000650 (open access)
Clare, L., Gamble, L.D., Martyr, A., Quinn, C., Litherland, R., Morris, R.G., Jones, I.R., & Matthews, F.E. (2022). Psychological processes in adapting to dementia: illness representations among the IDEAL cohort. Psychology and Aging, 37(4), 524-541. doi: 10.1037/pag0000650 (open access)
Clare, L., Gamble, L.D., Martyr, A., Sabatini, S., Nelis, S.M., Quinn, C., Pentecost, C., Victor, C., Jones, R.W., Jones, I.R., Knapp, M., Litherland, R., Morris, R.G., Rusted, J.M., Thom, J.M., Collins, R., Henderson, C., & Matthews, F.E., on behalf of the IDEAL study team. (2022). Longitudinal trajectories of quality of life among people with mild-to-moderate dementia: a latent growth model approach with IDEAL cohort study data. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 77, 1037-1050. doi: 10.1093/geronb/gbac022 (open access)
Clare, L., Gamble, L.D., Martyr, A., Sabatini, S., Nelis, S.M., Quinn, C., Pentecost, C., Victor, C., Jones, R.W., Jones, I.R., Knapp, M., Litherland, R., Morris, R.G., Rusted, J.M., Thom, J.M., Collins, R., Henderson, C., & Matthews, F.E. on behalf of the IDEAL study team. (2022). 'Living well' trajectories among family caregivers of people with mild-to-moderate dementia in the IDEAL cohort. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 77(10), 1852-1863. doi:10.1093/geronb/gbac090 (open access)
Clare, L., Martyr, A., Gamble, L.D., Pentecost, C., Collins, R., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Hillman, A., Litherland, R., Quinn, C., Matthews, F.E., & Victor, C. (2022). Impact of COVID-19 on ‘living well’ with mild-to-moderate dementia in the community: findings from the IDEAL cohort. Journal of Alzheimer's Disease, 85, 925-940. doi: 10.3233/JAD-215095
Collins, R., Hunt, A., Quinn, C., Martyr, A., Pentecost, C., & Clare, L. (2022). Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: findings from the IDEAL programme. Dementia, 21, 1135-1153. doi: 10.1177/14713012211069449 (open access)
Delgado, J., Evans, P.H., Gray, D.P., Sidaway-Lee, K., Allan, L., Clare, L., Ballard, C., Masoli, J., Valderas, J.M., & Melzer, D. (2022). Continuity of GP care for patients with dementia: impact on prescribing and the health of patients. British Journal of General Practice, 72, e91. doi: 10.3399/BJGP.2021.0413 (open access)
Gamble, L.D., Matthews, F.E., Jones, I.R., Hillman, A., Woods, B., MacLeod, C., Martyr, A., Collins, R., Pentecost, C., Rusted, J., & Clare, L. (2022). Characteristics of people living with undiagnosed dementia: findings from the CFAS Wales study. BMC Geriatrics, 22, 409. doi: 10.1186/s12877-022-03086-4 (open access)
Gamble, L.D., Parker, S., Quinn, C., Bennett, H.Q., Martyr, A., Sabatini, S., Pentecost, C., Collins, R., Dawson, E., Hunt, A., Allan, L., Burns, A., Litherland, R., Victor, C., Matthews, F.E., & Clare, L. (2022). A comparison of well-being of carers of people with dementia and their ability to manage before and during the COVID-19 pandemic: findings from the IDEAL study. Journal of Alzheimer’s Disease, 88(2), 679-692. doi: 10.3233/JAD-220221
Henderson, C., Knapp, M., Martyr, A., Gamble, L.D., Nelis, S.M., Quinn, C., Pentecost, C., Collins, R., Wu, Y.-T., Jones, I.R., Victor, C.R., Pickett, J.A., Jones, R.W., Matthews, F.E., Morris, R.G., Rusted, J.M., Thom, J.M., & Clare, L., on behalf of the IDEAL programme team. (2022). The use and costs of paid and unpaid care for people with dementia: findings from three waves of the IDEAL cohort programme. Journal of Alzheimer's Disease, 86, 135-153. doi: 10.3233/JAD-215117
Kelly, M., Nelis, S.M., Martyr, A., Gamble, L.D., & Clare, L. (2022). Trajectories of socio-emotional functioning in early-stage dementia: implications for the individual with dementia and their family carer. Aging & Mental Health, 26, 1069-1077. doi: 10.1080/13607863.2021.1895069
Martyr, A., Gamble, L.D., Nelis, S.M., Collins, R., Alexander, C.M., Morris, R.G., Quinn, C., Pentecost, C., Rusted, J.M., Victor, C., Thom, J.M., Matthews, F.E., & Clare, L., on behalf of the IDEAL study team. (2022). Predictors of awareness of functional ability in people with dementia: the contribution of personality, cognition, and neuropsychiatric symptoms. Findings from the IDEAL programme. Dementia and Geriatric Cognitive Disorders, 51, 221-232. doi: 10.1159/000524607 (open access)
Pentecost, C., Collins, R., Stapley, S., Victor, C., Quinn, C., Hillman, A., Litherland, R., Allan, L., & Clare, L. (2022). Effects of social restrictions on people with dementia and carers during the pre-vaccine phase of the COVID-19 pandemic: experiences of IDEAL cohort participants. Health & Social Care in the Community, 30(6), e4594-e4604. doi: 10.1111/hsc.13863 (open access)
Quinn, C., Gamble, L.D., Parker, S., Martyr, A., Collins, R., Victor, C., Dawson, E., Hunt, A., Pentecost, C., Allan, L., & Clare, L. (2022). Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort. International Journal of Geriatric Psychiatry, 37. doi: 10.1002/gps.5708 (open access)
Quinn, C., Hart, N., Henderson, C., Litherland, R., Pickett, J., & Clare, L. (2022). Developing supportive local communities: perspectives from people with dementia and caregivers participating in the IDEAL programme. Journal of Aging & Social Policy, 34(6), 839-859. doi: 10.1080/08959420.2021.1973341 (open access)
Quinn, C., Pickett, J.A., Litherland, R., Morris, R.G., Martyr, A., & Clare, L. (2022). Living well with dementia: what is possible and how to promote it. International Journal of Geriatric Psychiatry, 37. doi: 10.1002/gps.5627 (open access)
Sabatini, S., Bennett, H.Q., Martyr, A., Collins, R., Gamble, L.D., Matthews, F.E., Pentecost, C., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Litherland, R., Quinn, C., & Clare, L. (2022). Minimal impact of COVID-19 on the mental health and well-being of people living with dementia: analysis on matched longitudinal data from the IDEAL study. Frontiers in Psychiatry, 13, 849808. doi: 10.3389/fpsyt.2022.849808 (open access)
Sabatini, S., Martyr, A., Ukoumunne, O.C., Ballard, C., Collins, R., Pentecost, C., Rusted, J.M., Quinn, C., Anstey, K.J., Kim, S., Corbett, A., Brooker, H., & Clare, L. (2022). Attitudes toward own aging and cognition among individuals living with and without dementia: Findings from the IDEAL programme and the PROTECT study. BMC Geriatrics, 22(1), 641. doi: 10.1186/s12877-022-03336-5 (open access)
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Sabatini, S., Woods, R.T., Ukoumunne, O.C., Ballard, C., Collins, R., & Clare, L. (2022). Associations of subjective cognitive and memory decline with depression, anxiety, and two-year change in objectively-assessed global cognition and memory. Aging, Neuropsychology, and Cognition, 29(5), 840-866. doi: 10.1080/13825585.2021.1923634 (open access)
van Horik, J.O., Collins, R., Martyr, A., Henderson, C., Jones, R.W., Knapp, M., Quinn, C., Thom, J.M., Victor, C., & Clare, L., on behalf of the IDEAL Programme Team. (2022). Limited receipt of support services among people with mild-to-moderate dementia: findings from the IDEAL cohort. International Journal of Geriatric Psychiatry, 37. doi: 10.1002/gps.5688 (open access)
Alexander, C.M., Martyr, A., Gamble, L.D., Savage, S.A., Quinn, C., Morris, G.M., Collins, R., & Clare, L. in collaboration with the IDEAL programme research team. (2021). Does awareness of condition help people with mild-to-moderate dementia to live well? Findings from the IDEAL programme. BMC Geriatrics, 21, 511. doi: 10.1186/s12877-021-02468-4 (open access)
Alexander, C.M., Martyr, A., Savage, S.A., Morris, R.G., & Clare, L. (2021). Measuring awareness in people with dementia: results of a systematic scoping review. Journal of Geriatric Psychiatry and Neurology, 34, 335-348. doi: 10.1177/0891988720924717 (open access)
Choi, A., Ballard, C., Martyr, A., Collins, R., Morris, R.G., & Clare, L. (2021). The impact of auditory hallucinations on ‘living well’ with dementia: findings from the IDEAL programme. International Journal of Geriatric Psychiatry, 36, 1370-1377. doi: 10.1002/gps.5533 (open access)
Cox, K.L., Clare, L., Cyarto, E.V., Ellis, K.A., Etherton-Beer, C., Southam, J., Ames, D., Flicker, L., Almeida, O.P., LoGiudice, D., Liew, D., Vlaskovsky, P., & Lautenschlager, N.T. (2021). A randomized controlled trial on the effects of a 6-month home-based physical activity program with individual goal-setting and volunteer mentors on physical activity, adherence and physical fitness in inactive older adults at risk of cognitive decline: The INDIGO Study. Journal of Alzheimer’s Disease, 84, 207-226. doi: 10.3233/JAD-210479
Delgado, J., Jones, L., Bradley, M.C., Allan, L.M., Ballard, C., Clare, L., Fortinsky, R.H., Hughes, C.M., & Melzer, D. (2021). Potentially inappropriate prescribing in dementia, multi-morbidity and incidence of adverse health outcomes. Age and Ageing, 50, 457-464. doi.1093/ageing/afaa147
Heaton, J., Martyr, A., Nelis, S.M., Marková, I.S., Morris, R.G., Roth, I., Woods, R.T., & Clare, L. (2021). Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them. Ageing & Society, 41, 2660-2680. doi: 10.1017/S0144686X20000513
Horton, M.C., Oyebode, J., Clare, L., Megson, M., Shearsmith, L., Brayne, C., Kind, P., Hoare, Z., Al Janabi, H., Hewison, V., Tennant, A., & Wright, P. (2021). Measuring quality of life in carers of people with dementia: development and psychometric evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). The Gerontologist, 61, e1-e11. doi: 10.1093/geront/gnz136/5613258 (open access)
Liddle, J., Stuart, A., Worthy, P., Levine, M., Kastelle, T., Wiles, J., Pachana, N.A., & Clare, L. (2021). “Building the threads of connection that we already have”: the nature of connections via technology for older people. Clinical Gerontologist, 44, 406-417. doi:10.1080/07317115.2020.1852638
Morgan-Trimmer, S., Kudlicka, A., Warmoth, K., Leroi, I., Oyebode, J., Pool, J., Woods, R.T., & Clare, L. (2021). Implementation processes in a community-based cognitive rehabilitation intervention for people with dementia: findings from a complexity-informed analysis of a focus group, qualitative interviews and therapy records. BMJ Open, 11, e051255. doi: 10.1136/bmjopen-2021-051255 (open access)
Opdebeeck, C., Katsaris, M.A., Martyr, A., Lamont, R.A., Pickett, J.A., Rippon, I., Thom, J.M., Victor, C., & Clare, L., on behalf of the IDEAL programme team. (2020). What are the benefits of pet ownership and care among people with mild-to-moderate dementia? Findings from the IDEAL programme. Journal of Applied Gerontology, 40, 1559-1567. doi: 10.1177/0733464820962619 (open access)
O’Shaughnessy, N.J., Chan, J.E., Bhome, R., Gallagher, P., Zhang, H., Clare, L., Sampson, E.L., Stone, P., & Huntley, J. (2021). Awareness in severe Alzheimer’s disease: a systematic review. Aging & Mental Health, 25, 602-612. doi: 10.1080/13607863.2020.1711859 (open access)
Sabatini, S., Ukoumunne, O.C., Ballard, C., Collins, R., Anstey, K.J., Diehl, M., Brothers, A., Wahl, H.W., Corbett, A., Hampshire, A., Brooker, H., & Clare, L. (2021). Cross-sectional association between objective cognitive performance and perceived age-related gains and losses in cognition. International Psychogeriatrics, 33, 727-741. doi: 10..1017/s1041610221000375 (open access)
Sabatini, S., Ukoumunne, O.C., Ballard, C., Collins, R., Corbett, A., Brooker, H., & Clare, L. (2021). The cross-sectional relationship between pain and awareness of age-related changes. British Journal of Pain, 15, 335-344. doi: 10.1177/2049463720961798 (open access)
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Talbot, C., O'Dwyer, S.T., Clare, L., & Heaton, J. (2021). The use of Twitter by people with young-onset dementia: a qualitative analysis of narratives and identity formation in the age of social media. Dementia, 20, 2542-2557. doi: 10.1177/14713012211002410 (open access)
Thom, J.M., Cooney, J., Nelis, S.M., Hindle, J.V., Jones, I.R., & Clare, L. (2021). Promotion of healthy ageing within a community center through behavior change: health and fitness findings from the AgeWell pilot trial. Journal of Aging and Physical Activity, 29, 80-88. doi: 10.1080/13607863.2020.1711859
Victor, C.R., Rippon, I., Quinn, C., Martyr, A., & Clare, L., on behalf of the IDEAL programme team. (2021). The role of subjective social status in living well for carers of people with dementia: findings from the Improving the experience of Dementia and Enhancing Active Life programme. International Journal of Care and Caring, 5, 447–467. doi: 10.1332/239788221X16104266615749 (open access)
Victor, C.R., Rippon, I., Quinn, C., Nelis, S.M., Martyr, A., Hart, N., Lamont, R., & Clare, L., on behalf of the IDEAL programme team. (2021). The prevalence and predictors of loneliness in caregivers of people with dementia: findings from the IDEAL programme. Aging & Mental Health, 25, 1232-1238. doi: 10.1080/13607863.2020.1753014 (open access)
Weetch, J., O’Dwyer, S., & Clare, L. (2021). The involvement of people with dementia in advocacy: a systematic narrative review. Aging & Mental Health, 25, 1595-1604. doi: 10.1080/13607863.2020.1783512
Wu, Y.-T., Clare, L., Jones, I.R., Nelis, S.M., Quinn, C., Martyr, A., Victor, C.R., Lamont, R.A., Rippon, I., & Matthews, F.E., on behalf of the Improving the experience of Dementia and Enhancing Active Life (IDEAL) programme. (2021). Perceived and objective availability of green and blue spaces and quality of life in people with dementia: results from the IDEAL programme. Social Psychiatry and Psychiatric Epidemiology, 9, 1601-1610. doi:10.1007/s00127-021-02030-y (open access)
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Yates, J.A., Stanyon, M., Samra, R., & Clare, L. (2021). Challenges in disclosing and receiving a diagnosis of dementia: A systematic review of practice from the perspectives of people with dementia, carers, and healthcare professionals. International Psychogeriatrics. 33, 1161-1192. doi: 10.1017/S1041610221000119
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Clare, L., Martyr, A., Henderson, C., Gamble, L.D., Matthews, F.E., Quinn, C., Nelis, S.M., Rusted, J., Thom, J., Knapp, M., Hart, N., & Victor, C. (2020). Living alone with mild-to-moderate dementia: findings from the IDEAL cohort. Journal of Alzheimer's Disease, 78, 1207-1216. doi: 10.3233/JAD-200638
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Gooch, D., Mehta, V., Price, B., McCormick, C., Bandara, A., Bennaceur, A., Bennasar, M., Stuart, A., Clare, L., Levine, M., Cohen, J., & Nuseibeh, B. (2020). How are you feeling? Using Tangibles to Log the Emotions of Older Adults. Proceedings of the Fourteenth International Conference on Tangible, Embedded, and Embodied Interaction, 20, 31–43. doi: 10.1145/3374920.3374922
Gwernan-Jones, R., Abbott, R., Lourida, I., Rogers, M., Green, C., Ball, S., Hemsley, A., Cheeseman, D., Clare, L., Moore, D., Hussey, C., Coxon, G., Llewellyn, D.J., Naldrett, T., & Thompson Coon, J. (2020). The experience of hospital staff who provide care for people living with dementia: a systematic review and synthesis of qualitative studies. International Journal of Older People Nursing, 15, e12325. doi: 10.1111/opn.12325 (open access)
Hillman, A., Jones, I.R., Quinn, C., Nelis, S.M., Lamont, R.A., & Clare, L. (2020). 'All the world's a stage': accounting for the dementia experience - insights from the IDEAL programme. Qualitative Research, 20, 703-720. doi: 10.1177/1468794119893607
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McMaster, M., Kim, S., Clare, L., Torres, S.J., Cherbuin, N., D’Este, C., & Anstey, K.J. (2020). Lifestyle risk factors and cognitive outcomes from the multidomain dementia risk reduction randomized controlled trial, Body Brain Life for Cognitive Decline (BBL-CD). Journal of the American Geriatrics Society, 68, 2629-2637. doi: 10.1111/jgs.16762
Orgeta, V., McDonald, K.R., Poliakoff, E., Hindle, J.V., Clare, L., & Leroi, I. (2020). Cognitive training interventions for dementia and mild cognitive impairment in Parkinson’s disease. Cochrane Database of Systematic Reviews, Issue 2. Art. No.: CD011961. doi: 10.1002/14651858.CD011961.pub2 https://doi.org//10.1002/14651858.CD011961.pub2 (free access)
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Vatter, S., McDonald, K.R., Stanmore, E., McCormick, S.A., Clare, L., & Leroi, I. (2020). A brief psychometric and clinimetric evaluation of self-report burden and mental health measures completed by care partners of people with Parkinson’s-related dementia. International Psychogeriatrics, 32, 875-880. doi: 10.1017/S1041610220000605
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Clare, L., Marková, I.S., Romero, B., Verhey, F., Wang, M., Woods, R.T., & Keady, J. (2006), Awareness and people with early-stage dementia. In B.M.M. Miesen & G.M.M. Jones (Eds.), Caregiving in dementia: research and application, volume 4. London: Routledge, pp. 133-151.
Clare, L. (2006). Multi-component programs. In D. Koltai Attix and K.A. Welsh-Bohmer (Eds.), Geriatric neuropsychology: assessment and intervention. New York: Guilford, pp. 293-314.
Downs, M., Clare, L., & Mackenzie, J. (2006). Understandings of dementia: explanatory models and their implications for the person with dementia and therapeutic effort. In J.C. Hughes, S.J. Louw, & S.R. Sabat (Eds.), Dementia: mind, meaning and the person. Oxford: Oxford University Press, pp. 235-258.
Clare, L. (2005). Cognitive rehabilitation in early-stage dementia: evidence, practice and future directions. In P. Halligan & D. Wade (Eds.), Evidence for the effectiveness of cognitive rehabilitation. Oxford: Oxford University Press, pp. 327-336. doi: 10.1093/acprof:oso/9780198526544.003.0026
Clare, L. (2004). Assessment and intervention in dementia of Alzheimer type. In A.D. Baddeley, B.A. Wilson, & M. Kopelman (Eds.), The essential handbook of memory disorders for clinicians. Chichester: Wiley, pp. 255-283.
Clare, L. (2004). Cognitive rehabilitation for people with early-stage dementia. In M.T. Marshall (Ed.), Perspectives on rehabilitation and dementia. London: Jessica Kingsley, pp. 180-186.
Rusted, J., & Clare, L. (2004). Cognitive approaches to the management of dementia. In R.G. Morris & J.D. Becker (Eds.), Cognitive neuropsychology of Alzheimer’s disease, 2nd edition. Oxford: Oxford University Press, pp. 379-390.
Clare, L. (2003). Rehabilitation for people with dementia. In B.A. Wilson (Ed.), Neuropsychological rehabilitation: theory and practice. Lisse, NL: Swets & Zeitlinger, pp. 197-215.
Clare, L. (2003). Cognitive rehabilitation in early-stage dementia. In B. Vellas & B. Winblad (Eds.), Research and practice in Alzheimer’s disease, volume 7. New York: Springer.
Wilson, B.A., & Clare, L. (2003). Rehabilitation of memory disorders. In R.J. Greenwood, T.M. McMillan, M.P. Barnes, & C.D. Ward (Eds.), Handbook of neurological rehabilitation, 2nd edition. Hove: Psychology Press, pp. 377-386.
Clare, L. (2002). Assessment and intervention in dementia of the Alzheimer’s type. In A.D. Baddeley, B.A. Wilson, & M. Kopelman (Eds.), Handbook of memory disorders, 2nd edition. Chichester: Wiley, pp. 711-740.
Clare, L., & Birchwood, M. (1998). Social adjustment of patients living at home. In K.T. Mueser & N. Tarrier (Eds.), Handbook of social functioning in schizophrenia. Boston: Allyn & Bacon, pp. 79-98.
McKenna, P.J., Clare, L., & Baddeley, A.D. (1995). Schizophrenia. In A.D. Baddeley, B.A. Wilson, & F.N. Watts (Eds.), Handbook of memory disorders. Chichester: Wiley, pp. 271-292.
Wilson, B.A., Greenfield, E., Clare, L., Baddeley, A.D., Cockburn, J., Watson, P., Tate, R., Sopena, S., & Nannery, R. (2007). Rivermead Behavioural Memory Test - Third Edition (RBMT-3). London: Harcourt Assessment.
Wilson, B.A., Clare, L., Cockburn, J., Baddeley, A.D., Tate, R., & Watson, P. (1999). The Rivermead Behavioural Memory Test - Extended Version. Bury St Edmunds: Thames Valley Test Company.
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