Journal articles
Ford TJ, Wilkinson K, Berry V, Fox J (In Press). Could Mindfulness-Based Cognitive Therapy prevent a lifelong recurrent course of depression or anxiety by addressing key mechanisms of vulnerability in adolescents at highest risk?. British Journal of Psychiatry
Wilkinson K, Boyd K, Pearson M, Farrimond H, Lang L, Fleischer D, Poole A, Ralph N, Rappert B (In Press). Making Sense of Evidence: Using Research Training to Promote Organisational Change. Police Practice and Research: an International Journal
Berry V, Mitchell SB, Blower S, Whittaker K, Wilkinson K, McGilloway S, Mason-Jones A, Carr RM, Bywater T (2022). Barriers and facilitators in the delivery of a proportionate universal parenting program model (E-SEE Steps) in community family services.
PLOS ONE,
17(6), e0265946-e0265946.
Abstract:
Barriers and facilitators in the delivery of a proportionate universal parenting program model (E-SEE Steps) in community family services
BackgroundA proportionate universal (PU) approach to early years’ service provision has been advocated to improve children’s health and development and to reduce health inequality, by ensuring that services provide timely and high-quality parenting support commensurate with need. Process-oriented research is critical to examine the factors that contribute to, or hinder, the effective delivery/implementation of such a model in community-based family services. This study aimed to assess the delivery, acceptability and feasibility of a new PU parenting intervention model (called E-SEE Steps), using the Incredible Years® (IY) parent program, when delivered by trained health/family service staff in three “steps”—one universal step (the IY Babies Book), and two targeted steps (group-based IY Infant and Toddler programs).MethodsAn embedded mixed-methods process evaluation within a pragmatic parallel two-arm, assessor blinded, randomized controlled trial was conducted in community services in four local authorities in England. The process evaluation used qualitative data gathered via interviews and focus groups with intervention arm parents who were offered the targeted steps (n = 29), practitioners (n = 50), service managers (n = 7) and IY program mentors (n = 3). This was supplemented by quantitative data collected using group leader pre-training (n = 50) and post-delivery (n = 39) questionnaires, and research notes of service design decisions.ResultsThe E-SEE Steps model was acceptable to most parents, particularly when it was accompanied by engagement strategies that supported attendance, such as providing childcare. Practitioners also highlighted the positive development opportunities provided by the IY training and supervision. However, participant views did not support the provision of the IY Babies book as a standalone universal component, and there were barriers to eligible parents—particularly those with low mood—taking up the targeted programs. Service providers struggled to align the PU model with their commissioned service contracts and with their staff capacity to engage appropriate parents, including tackling common barriers to attendance.ConclusionsDespite general enthusiasm and support for delivering high-quality parenting programs in community services in the England, several barriers exist to successfully delivering IY in a proportionate universal model within current services/systems.
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Wilkinson K, Day J, Thompson-Coon J, Goodwin V, Liabo K, Coxon G, Cox G, Marriott C, Lang IA (2021). A realist evaluation of a collaborative model to support research co-production in long-term care settings in England: the ExCHANGE protocol.
Res Involv Engagem,
7(1).
Abstract:
A realist evaluation of a collaborative model to support research co-production in long-term care settings in England: the ExCHANGE protocol.
BACKGROUND: Collaborative working between academic institutions and those who provide health and social care has been identified as integral in order to produce acceptable, relevant, and timely research, and for outputs to be useful and practical to implement. The ExCHANGE Collaboration aims to bring together researchers and people working, living in and visiting care homes to build capacity, share and mobilise knowledge, and identify key areas for future research. This paper describes an embedded, formative, realist and theory-driven evaluation which aims to gather information about how successful the ExCHANGE Collaboration is perceived to be in achieving its aims. An existing realist programme theory from the literature - Closer Collaboration - will be supplemented by two substantive theories: Co-production and Knowledge Brokering. This will result in an initial programme theory which will be tested by this formative evaluation to refine understanding of how the ExCHANGE Collaboration works. METHODS: the evaluation will employ mixed qualitative methods, including: analysis of documents such as feedback forms, Knowledge Broker journal/diary, event attendance records, risk and issues logs and other relevant paperwork gathered as part of project delivery; observations of events/activities; and interviews with care home providers and staff, care home residents, residents' family members, and researchers who are involved in the project (both project design/delivery, and also attendance or involvement in project activities/events). Framework Analysis will be used to interpret the data collected; analysis will be strategic, by focusing on particular key areas of importance in the developing theory of how the ExCHANGE Collaboration might achieve change. RESULTS: the results of this study are expected to be published in 2022. DISCUSSION: This evaluation will investigate how successful the ExCHANGE Collaboration is perceived to be in achieving its aims, in what way, in which contexts, and how this may differ for those involved. It will do this by testing an initial programme theory about how the collaboration works, for whom, under which circumstances, and in what way. Findings will be shared through written publication, an end of project learning event for those involved/interested in the project, and a lay summary to be made publically available.
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Lloyd J, Bjornstad G, Borek A, Cuffe-Fuller B, Fredlund M, McDonald A, Tarrant M, Berry V, Wilkinson K, Mitchell S, et al (2021). Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention.
BMJ Open,
11(8).
Abstract:
Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention.
OBJECTIVES: Parent carers of children with special educational needs or disability are at risk of poorer mental and physical health. In response to these needs, we codeveloped the 'Healthy Parent Carers' (HPC) programme. This study examined the views and experiences of participants in the HPC feasibility trial to inform programme refinement. INTERVENTION, SETTING AND PARTICIPANTS: HPC is a peer-led group-based intervention (supported by online materials) for primary carers of disabled children, encouraging behaviours linked with health and well-being. It was delivered by two lead and six assistant peer facilitators in six community sites (one lead and one assistant per group) in South West England over six or 12 sessions. Control participants had online materials only. The trial involved 47 intervention and 45 control parent carers (97% female and 97% white) and eight facilitators (one male). DESIGN: a preplanned mixed methods process evaluation using questionnaires and checklists (during and after the intervention), qualitative interviews with participants after intervention (n=18) and a focus group with facilitators after trial. RESULTS: HPC was highly acceptable to participants and facilitators and experiences were very positive. Participants reported that the programme increased awareness of what parent carers could and could not change and their self-efficacy to engage in health-promoting behaviours. The intended mechanisms of action (social identification and peer support) matched participants' expectations and experiences. Control participants found the online-only programme flexible but isolating, as there were no opportunities to share ideas and problem solve with peers, the key function of the programme. Areas for improvement were identified for programme content, facilitator training and delivery. CONCLUSION: HPC was acceptable, well received and offers considerable potential to improve the health of parent carers. Under the pandemic, the challenge going forward is how best to maintain reach and fidelity to function while delivering a more virtual programme. TRIAL REGISTRATION NUMBER: ISRCTN151144652.
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Bjornstad G, Cuffe-Fuller B, Ukoumunne OC, Fredlund M, McDonald A, Wilkinson K, Lloyd J, Hawton A, Berry V, Tarrant M, et al (2021). Healthy Parent Carers: feasibility randomised controlled trial of a peer-led group-based health promotion intervention for parent carers of disabled children. Pilot and Feasibility Studies, 7
Wilkinson K, Gumm R, Hambly H, Logan S, Morris C (2021). Implementation of training to improve communication with disabled children on the ward: a feasibility study.
Health Expectations,
24(4), 1433-1442.
Abstract:
Implementation of training to improve communication with disabled children on the ward: a feasibility study
AbstractBackgroundParents of disabled children report poorer inpatient experiences when they stay in hospital, and some staff report finding communicating with disabled children challenging. This study tested the feasibility of implementing a training package for staff on paediatric wards to improve communication with disabled children, especially those with communication difficulties, and their families. The package was developed with parent carers and clinicians, and comprises a manual, a video of parent carers talking about real experiences, discussion points and local resources. The 50‐minutes training is intended for in‐house delivery by local facilitators.MethodsThirteen training sessions were delivered in paediatric wards across four hospitals in England, totalling 123 staff who took part. Participants completed questionnaires before (n = 109) and after (n = 36) training, and a sample of champions (senior clinicians) and facilitators were interviewed at the end of the study.ResultsFacilitators found the training easy to deliver, and participants felt they took away important messages to improve their practice. After the training, further changes were reported at an organizational level, including offering further training and reviewing practices.ConclusionsThis study provides supporting evidence for the implementation of a low‐cost, minimal‐resource training package to support staff communication with children and their families in hospitals. It provides promising indication of impact on behavioural change at the individual and organizational level.Patient and public contributionParent carers identified the need and helped to develop the training, including featuring in the training video. They were also consulted throughout the study on research design, delivery and reporting.
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Wilkinson K, Ball S, Mitchell S, Ukoumunne O, O'Mahen H, Tejerina-Arreal M, Hayes R, Berry V, Petrie I, Ford T, et al (2021). The longitudinal relationship between child emotional disorder and parental mental health in the British Child and Adolescent Mental Health surveys 1999 and 2004. Journal of Affective Disorders, 288, 58-67.
Berry V, Wilkinson K, Farr N, Stimson A (2019). Assessing the Feasibility of a Parent Life Coaching Intervention to Support Parents and Children Who Have Experienced Domestic Violence and Abuse.
Journal of Family Violence,
34(6), 493-506.
Abstract:
Assessing the Feasibility of a Parent Life Coaching Intervention to Support Parents and Children Who Have Experienced Domestic Violence and Abuse
Children exposed to domestic violence are at risk for a range of psychosocial difficulties, which may be mitigated by improving their caregiver’s mental health and capacity to parent. Life coaching is a promising behaviour change approach for improving the empowerment, efficacy and well-being of carers who are parenting alone following domestic violence. This study evaluated the feasibility of a novel life coaching programme. Using a pre- post-test design, the Family Vision© (FV) programme was implemented in two community settings. The programme was offered to single mothers with experience of domestic violence. Feasibility data were collected using satisfaction forms, semi-structured interviews and focus groups with parents, facilitators and managers. Mothers’ self-reports about their mental well-being; empowerment and self-efficacy were collected, as well as the quality of their parent-child relationships and children’s psychosocial functioning, using standardised measures at baseline and end of programme. The programme was found to have good acceptability for this population of parents and was considered feasible to deliver in the two community settings where it was piloted. There were indications that women who completed the programme had improved mental well-being, as well as improved empowerment and efficacy by the end of the programme. The FV programme is feasible to implement and could support positive change for single parents with respect to their mental health and capacity to parent effectively. Demonstrated mediators, these effects could also promote children’s health and well-being. Feasibility for a randomised trial and wider scale-up in the community is now required.
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Bjornstad G, Wilkinson K, Cuffe-Fuller B, Fitzpatrick K, Borek A, Ukoumunne OC, Hawton A, Tarrant M, Berry V, Lloyd J, et al (2019). Healthy Parent Carers peer-led group-based health promotion intervention for parent carers of disabled children: protocol for a feasibility study using a parallel group randomised controlled trial design.
Pilot and Feasibility Studies,
5(1).
Abstract:
Healthy Parent Carers peer-led group-based health promotion intervention for parent carers of disabled children: protocol for a feasibility study using a parallel group randomised controlled trial design
Abstract
. Background
. Parent carers of disabled children are at increased risk of mental and physical health problems. They often experience challenges to maintaining good health which have implications for their well-being and their ability to care for their children. In response to these needs, researchers and parent carers developed the Healthy Parent Carers (HPC) programme. It is a peer-led, group-based intervention that promotes behaviours associated with health and well-being. The aims of this trial are to assess the acceptability of the HPC programme and the feasibility of its delivery in the community and to assess the feasibility and acceptability of the design of the definitive trial to evaluate the programme’s effectiveness and cost-effectiveness.
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. Methods
. We will establish six research sites and train facilitators to deliver the manualised intervention. Parent carers of children with special educational needs and disabilities will be individually randomised, stratified by group delivery site, to either take part in a group programme and online resources (intervention) or to receive access to the online resources only (control). Measures of mental health; well-being; health-related quality of life; health behaviours; patient activation; protective factors such as resilience, social connections, and practical support; and use of health care, social care, and wider societal resources will be collected before randomisation (baseline), immediately post-intervention, and 6 months later. Recruitment of participants, adherence to the programme, and the dose received will be assessed. Group sessions will be audio-recorded to evaluate the fidelity of delivery and participant engagement. Participants’ and facilitators’ feedback on the programme content and delivery, their experience, and the acceptability of the outcome measures and trial design will be collected through feedback forms, interviews, and focus groups.
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. Discussion
. This trial will assess whether the programme delivery and evaluative trial design are feasible, to inform whether to progress to a definitive randomised controlled trial to test the effectiveness and cost-effectiveness of the Healthy Parent Carers programme.
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. Trial registration
. ISRCTN, ISRCTN151144652, registered on 25 October 2018; ClinicalTrials.gov, NCT03705221, registered on 15 October 2018.
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WILKINSON KS, HOUSTON-PRICE C (2012). Once upon a time, there was a pulchritudinous princess. .: the role of word definitions and multiple story contexts in children's learning of difficult vocabulary.
Applied Psycholinguistics,
34(3), 591-613.
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Once upon a time, there was a pulchritudinous princess. . .: the role of word definitions and multiple story contexts in children's learning of difficult vocabulary
ABSTRACTThe close relationship between children's vocabulary size and their later academic success has led researchers to explore how vocabulary development might be promoted during the early school years. We describe a study that explored the effectiveness of naturalistic classroom storytelling as an instrument for teaching new vocabulary to 6- to 9-year-old children. We examined whether learning was facilitated by encountering new words in single versus multiple story contexts, or by the provision of age-appropriate definitions of words as they were encountered. Results showed that encountering words in stories on three occasions led to significant gains in word knowledge in children of all ages and abilities, and that learning was further enhanced across the board when teachers elaborated on the new words’ meanings by providing dictionary definitions. Our findings clarify how classroom storytelling activities can be a highly effective means of promoting vocabulary development.
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