COLLEGE OF MEDICINE AND HEALTH
Medicine, Nursing and Allied Health Professions

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Dr Anne-Marie Russell

Dr Anne-Marie Russell

Senior Lecturer (E&R)

 South Cloisters D1 3.01

 

South Cloisters, University of Exeter, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK

Overview

My research interests are in symptom experience, patient centred outcome and experience measures, patient-centred and mixed qualitative and quantitative methodological approaches. My interests and progressive specialism in interstitial lung diseases (ILDs) spans 14 years, affirmed through my work on  the PROFILE study, a  national longitudinal observational study to assess potential biomarkers to predict outcomes for people with Idiopathic Pulmonary Fibrosis (IPF) I explored the usefulness of home spirometry as a predictor of exacerbation alongside a range of symptom and quality of life measures at Royal Brompton Hospital, National Heart and Lung Institute. Awarded a competitive NIHR CDRF I completed a part time PhD at Imperial College, London developing and testing a patient-reported outcome measure for patients with IPF (IPF-PROM © Imperial College London). The 12-item IPF-PROM has been validated in UK, Europe and US IPF populations; it has been translated into Danish, German, Spanish and Portuguese and is incorporated into the ILD-Care Information Exchange electronic portal at Imperial College Healthcare Trust. Further post-doctoral research at Imperial College Healthcare Trust explored the usefulness of Patient Activation Measures in people with Interstitial Lung Diseases (ILD).

I represent ILD interdisciplinary interests at the European Respiratory Society and was awarded fellow of the American Thoracic Society for service in 2020. I regularly conduct peer review and collaborate on international Task Force and JLA research priority setting projects.

I work collaboratively with Professor Michael Gibbons and Dr Chris Scotton in the Respiratory Clinical Academic Unit. Our research group Supporting Self-management in ILD, a collaboration between the Royal Devon and Exeter NHS Foundation Trust and the University of Exeter, supports research associates, research fellows and interns working on range of projects relating to ILD. In partnership with patients we are developing a clinical trails acceleration programme for the South West supported by the NIHR Clinical Research Network South West Peninsula. I offer docotoral supervison for projects within my areas of expertise. 

As a NIHR 70@70 Senior Clinical researcher I have an interest in supporting integrated clinical academic (ICA) pathways specifically for nurses and midwives in primary care / general practice. I am a co-investigator on the COVID NURSE study, currently open to recruitment. This study led by Professor Dave Richards will impact patient experience, care quality, patients’ ability to manage day to day activities and treatment outcomes.

Qualifications

  • PhD Respiratory Medicine | Imperial College London
  • MSc (distinction) | Advanced Practice  
  • BSc (hons) Public Health  | BSc (hons) Professional practice and research methods
  • Post Graduate Certificate in Education (distinction) 
  • Post Graduate Certificate in Family Therapy & Systemic Practice
  • Certificate in Tropical Diseases and Laboratory Techniques | LSHTM

Links

Research group links

Research

Research interests

Anne-Marie collaborates on studies relating to fibrotic lung conditions, patient-centeredness, mixed qualitative and quantitative methods particularly consensus approaches and psychometrics for health instrument development and assessment. Anne-Marie’s interests include all interstitial lung disease entities and caregiver burden, with a core focus on measuring what matters to patients so that outcomes and experiences, particularly PROMs and PREMs are authentic and meaningful.

Patient-centred approaches include working with patients as research partners from conception through to study design, delivery and outputs.  Anne-Marie is working with the University’s Exeter Patients in Collaboration for pulmonary fibrosis research group (EPIC) who guide collective and interdisciplinary research endeavours, and with patient partners and research steering groups within the Academy of Nursing.

Anne-Marie is interested in non-pharmacological approaches to palliation of symptoms and has undertaken service development projects to explore the impact of singing techniques and mindfulness for breath management in patients with ILD. 

http://orcid.org/0000-0002-0468-353

Research projects

Co-investigator (2020): COVID-NURSE study University of Exeter (open) PI: D Richards

Co-investigator (2020): Patient Perspectives in Living with Fibrotic lung conditions in COVID Times Tulane University | New Orleans. (Recruiting) PI: LA Saketkoo

Co-investigator (2020): Validation of the Mawdsley Questionnaire in Systemic Sclerosis-associated calcinosis. Tulane University | New Orleans. (Recruiting) PI: LA Saketkoo

Chief-Investigator: (2019) An observational study to explore the validity and appropriateness of the generic Patient Activation Measure (PAM) in a population diagnosed with Interstitial Lung Disease. Imperial College Healthcare NHS Trust | London. (in evaluation) PI: AM Russell

Co-investigator: (2019) An exploration of attitudes, beliefs and experiences of patients and GP’s, on SABA and ICS prescription and adherence. NHLI Imperial College | London (in ethical review). PI: J Quint

Co-investigator: (2019) Development of Airway Absorption Sampling Methods for Biomarker Assessment in Idiopathic Pulmonary Fibrosis (IPF) Imperial College |London PI: T Hansell

Co-investigator: (2019) Compassion Cultivation Skills Training (CCT) in Medicine: Controlled Skill-building Intervention Trial in Pulmonary Critical Care (PCC) Fellows. Louisiana State University | New Orleans. (in evaluation) PI: LA Saketkoo

Co-investigator: (2018) An open label phase IV, multicentre, international, interventional study to evaluate the effect of diet on gastrointestinal adverse events in patients with IPF treated with Pirfenidone (MADIET) European Study UK IRAS ID: 245949 (in evaluation) PI: M Molina-Molina

Co-investigator: (2016) Development and Testing of a Patient Reported Experience Measure in Idiopathic Pulmonary Fibrosis (IPF-PREM study) utilising patient centred and mixed methodologies. Imperial college Healthcare NHS Trust. Validation open 2019. (Recruiting) PI: M Wickremasinghe

Research grants

  • 2021 NIHR
    NIHR Clinical Research Network South West Peninsula
  • 2021 NHS
    Research Capacity Funding
  • 2020 NIHR
    National Institute for Health Research (NIHR) and UK Research and Innovation (UKRI)

Publications

Key publications | Publications by category | Publications by year

Key publications


Drake TM, Docherty AB, Harrison EM, Quint JK, Adamali H, Agnew S, Babu S, Barber CM, Barratt S, Bendstrup E, et al (2020). Outcome of Hospitalization for COVID-19 in Patients with Interstitial Lung Disease. An International Multicenter Study. American Journal of Respiratory and Critical Care Medicine, 202(12), 1656-1665. Full text.
Kreuter M, Bendstrup E, Russell A-M, Bajwah S, Lindell K, Adir Y, Brown CE, Calligaro G, Cassidy N, Corte TJ, et al (2017). Palliative care in interstitial lung disease: living well. LANCET RESPIRATORY MEDICINE, 5(12), 968-980. Author URL.
Russell A-M, Adamali H, Molyneaux PL, Lukey PT, Marshall RP, Renzoni EA, Wells AU, Maher TM (2016). Daily Home Spirometry: an Effective Tool for Detecting Progression in Idiopathic Pulmonary Fibrosis. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 989-997. Author URL.

Publications by category


Journal articles

Edwards C, Costello E, Cassidy N, Vick B, Russell A-M (In Press). The utility of an electronic health journal with home spirometry in a real world population of people with fibrotic lung conditions. Journal of Medical Internet Research
Richards DA, Sugg HVR, Cockcroft E, Cooper J, Cruickshank S, Doris F, Hulme C, Logan P, Iles-Smith H, Melendez-Torres GJ, et al (2021). COVID-NURSE: evaluation of a fundamental nursing care protocol compared with care as usual on experience of care for noninvasively ventilated patients in hospital with the SARS-CoV-2 virus—protocol for a cluster randomised controlled trial. BMJ Open, 11(5), e046436-e046436. Abstract.  Full text.
Saketkoo LA, Russell A-M, Jensen K, Mandizha J, Tavee J, Newton J, Rivera F, Howie M, Reese R, Goodman M, et al (2021). Health-Related Quality of Life (HRQoL) in Sarcoidosis: Diagnosis, Management, and Health Outcomes. Diagnostics, 11(6), 1089-1089. Abstract.
Noth I, Cottin V, Chaudhuri N, Corte TJ, Johannson KA, Wijsenbeek M, Jouneau S, Michael A, Quaresma M, Rohr KB, et al (2021). Home spirometry in patients with idiopathic pulmonary fibrosis: data from the INMARK trial. European Respiratory Journal, 2001518-2001518. Abstract.
Castro-Sanchez E, Russell A-M, Dolman L, Wells M (2021). What place does nurseā€led research have in the COVIDā€19 pandemic?. International Nursing Review, 1-5.
Saketkoo LA, Alexanderson H, Lammi MR, LeSage D, Jensen K, Scholand MB, Volkmann ER, Russell AM (2020). An ode to the primal tonic of dance—congratulating the Life of Breath project. The Lancet Respiratory Medicine, 8(12), e90-e91.
Kim JW, Olive S, Jones S, Thillai M, Russell A-M, Johnson MJ, Wilson A (2020). Interstitial lung disease and specialist palliative care access: a healthcare professionals survey. BMJ Supportive & Palliative Care Abstract.
Russell A (2020). Letter from the. UK. Respirology, 25(12), 1325-1327.
Drake TM, Docherty AB, Harrison EM, Quint JK, Adamali H, Agnew S, Babu S, Barber CM, Barratt S, Bendstrup E, et al (2020). Outcome of Hospitalization for COVID-19 in Patients with Interstitial Lung Disease. An International Multicenter Study. American Journal of Respiratory and Critical Care Medicine, 202(12), 1656-1665. Full text.
Saketkoo LA, Scholand MB, Lammi MR, Russell A-M (2020). Patient-reported outcome measures in systemic sclerosis–related interstitial lung disease for clinical practice and clinical trials. Journal of Scleroderma and Related Disorders, 5(2_suppl), 48-60. Abstract.  Full text.
Edwards C, Costello E, Cassidy N, Vick B, Russell A-M (2020). Use of the patientMpower App with Home-Based Spirometry to Monitor the Symptoms and Impact of Fibrotic Lung Conditions: Longitudinal Observational Study. JMIR mHealth and uHealth, 8(11), e16158-e16158. Abstract.
Moor CC, Wijsenbeek MS, Balestro E, Biondini D, Bondue B, Cottin V, Flewett R, Galvin L, Jones S, Molina-Molina M, et al (2019). Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey. ERJ Open Research, 5(4), 00124-2019. Abstract.
Lim RK, Humphreys C, Morisset J, Holland AE, Johannson KA (2019). Oxygen in patients with fibrotic interstitial lung disease: an international Delphi survey. European Respiratory Journal, 54(2), 1900421-1900421. Abstract.
Russell AM, Olive S, Lines S, Murphy A, Hocking J, Newell K, Morris H, Harris E, Dixon C, Agnew S, et al (2018). Contemporary challenges for specialist nursing in interstitial lung disease. Breathe, 14(1), 36-41. Abstract.
Visca D, Mori L, Tsipouri V, Fleming S, Firouzi A, Bonini M, Pavitt MJ, Alfieri V, Canu S, Bonifazi M, et al (2018). Effect of ambulatory oxygen on quality of life for patients with fibrotic lung disease (AmbOx): a prospective, open-label, mixed-method, crossover randomised controlled trial. Lancet Respir Med, 6(10), 759-770. Abstract.  Author URL.
Saketkoo LA, Karpinski A, Young J, Adell R, Walker M, Hennebury T, Wickremasinghe M, Russell A-M (2018). Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis. ERJ Open Research, 4(2), 00085-2017.
Newell K, Smith K, Russell A-M (2018). Palliative and end of life care in idiopathic pulmonary fibrosis. Primary Health Care, 28(4), 27-35.
Maher TM, Oballa E, Simpson JK, Porte J, Habgood A, Fahy WA, Flynn A, Molyneaux PL, Braybrooke R, Divyateja H, et al (2017). An epithelial biomarker signature for idiopathic pulmonary fibrosis: an analysis from the multicentre PROFILE cohort study. The Lancet Respiratory Medicine, 5(12), 946-955. Abstract.
Spruit MA, Burtin C, Langer D, Makonga J, Russell A-M, York J, Steenbruggen I (2017). Assembly 9: allied respiratory professionals. Breathe, 12(4), e113-e114.
van Manen MJG, Birring SS, Vancheri C, Vindigni V, Renzoni E, Russell A-M, Wapenaar M, Cottin V, Wijsenbeek MS (2017). Effect of pirfenidone on cough in patients with idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY JOURNAL, 50(4). Author URL.
Kreuter M, Bendstrup E, Russell A-M, Bajwah S, Lindell K, Adir Y, Brown CE, Calligaro G, Cassidy N, Corte TJ, et al (2017). Palliative care in interstitial lung disease: living well. LANCET RESPIRATORY MEDICINE, 5(12), 968-980. Author URL.
Maher TM, Molina-Molina M, Russell A-M, Bonella F, Jouneau S, Ripamonti E, Axmann J, Vancheri C (2017). Unmet needs in the treatment of idiopathic pulmonary fibrosis-insights from patient chart review in five European countries. BMC PULMONARY MEDICINE, 17 Author URL.
van Manen MJG, Birring SS, Vancheri C, Cottin V, Renzoni EA, Russell A-M, Wijsenbeek MS (2016). Cough in idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY REVIEW, 25(141), 278-286. Author URL.
Russell A-M, Maher TM (2016). Daily Home Spirometry: a New Milestone in the Field of Pulmonary Fibrosis Reply. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 1034-1035. Author URL.
Russell A-M, Adamali H, Molyneaux PL, Lukey PT, Marshall RP, Renzoni EA, Wells AU, Maher TM (2016). Daily Home Spirometry: an Effective Tool for Detecting Progression in Idiopathic Pulmonary Fibrosis. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 989-997. Author URL.
Russell A-M, Ripamonti E, Vancheri C (2016). Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients' perspectives of the disease and treatment. BMC PULMONARY MEDICINE, 16 Author URL.
Lewis A, Cave P, Stern M, Welch L, Taylor K, Russell J, Doyle A-M, Russell A-M, McKee H, Clift S, et al (2016). Singing for Lung Health-a systematic review of the literature and consensus statement. NPJ PRIMARY CARE RESPIRATORY MEDICINE, 26 Author URL.
Russell A-M, Swigris JJ (2016). What's it like to live with idiopathic pulmonary fibrosis? Ask the experts. EUROPEAN RESPIRATORY JOURNAL, 47(5), 1324-1326. Author URL.
Russell AM (2015). Care planning in idiopathic pulmonary fibrosis. Nursing Times, 111(18), 20-22. Abstract.
Russell A-M (2015). Idiopathic pulmonary fibrosis: Care Standards. Nursing Times, 111:18, 23-25.
Russell AM (2015). Interstitial pulmonary fibrosis: Care standards. Nursing Times, 111(18), 16-17. Abstract.
Jenkins RG, Simpson JK, Saini G, Bentley JH, Russell A-M, Braybrooke R, Molyneaux PL, McKeever TM, Wells AU, Flynn A, et al (2015). Longitudinal change in collagen degradation biomarkers in idiopathic pulmonary fibrosis: an analysis from the prospective, multicentre PROFILE study. LANCET RESPIRATORY MEDICINE, 3(6), 462-472. Author URL.
Lammi M, Baughman R, Birring S, Russell A-M, Ryu J, Scholand M, Distler O, LeSage D, Sarver C, Antoniou K, et al (2015). Outcome Measures for Clinical Trials in Interstitial Lung Diseases. Current Respiratory Medicine Reviews, 11(2), 163-174.
Russell A-M, Sprangers MAG, Wibberley S, Snell N, Rose DM, Swigris JJ (2015). The need for patient-centred clinical research in idiopathic pulmonary fibrosis. BMC MEDICINE, 13 Author URL.
Russell AM, Maher TM (2014). Detecting anxiety and depression in patients diagnosed with an interstitial lung disease. Can we do better?. RESPIROLOGY, 19(8), 1095-1096. Author URL.
Wuyts WA, Peccatori FA, Russell A-M (2014). Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models. European Respiratory Review, 23(132), 231-238.
Molyneaux PL, Cox MJ, Willis-Owen SAG, Mallia P, Russell KE, Russell A-M, Murphy E, Johnston SL, Schwartz DA, Wells AU, et al (2014). The Role of Bacteria in the Pathogenesis and Progression of Idiopathic Pulmonary Fibrosis. American Journal of Respiratory and Critical Care Medicine, 190(8), 906-913.
Stock CJ, Sato H, Fonseca C, Banya WAS, Molyneaux PL, Adamali H, Russell A-M, Denton CP, Abraham DJ, Hansell DM, et al (2013). Mucin 5B promoter polymorphism is associated with idiopathic pulmonary fibrosis but not with development of lung fibrosis in systemic sclerosis or sarcoidosis. THORAX, 68(5), 436-441. Author URL.
Adamali HI, Anwar MS, Russell A-M, Egan JJ (2012). Non-pharmacological treatment of idiopathic pulmonary fibrosis. Current Respiratory Care Reports, 1(4), 208-215.
Yorke J, Swigris J, Russell A-M, Moosavi SH, Kwong GNM, Longshaw M, Jones PW (2011). Dyspnea-12 is a Valid and Reliable Measure of Breathlessness in Patients with Interstitial Lung Disease. CHEST, 139(1), 159-164. Author URL.
Yorke J, Russell AM (2008). Interpreting the language of breathlessness. Nursing times, 104(23), 36-39. Abstract.

Conferences

Fox L, McLeodl L, Russell A, Edwards C, O'Reilly KMA (2020). An Observational Study of Self-Monitoring of Spirometry and Symptoms via a Mobile Electronic Health Journal in Usual Care of Patients with Idiopathic Pulmonary Fibrosis.  Author URL.
Russell A, Wickremasinghe M, Aul R, Datta A, Saketkoo L, Wells M (2020). Measuring Patient Activation Measurement in Patients Diagnosed with Interstitial Lung Disease (ILD) to Inform Enabling and Compassionate Care.  Author URL.
Russell A-M, Aul R, Datta A, Wickremasinghe M (2020). Measuring patient activation in an interstitial lung disease (ILD) population: an exploratory study. ERS International Congress 2020 abstracts.
Fontanilles E, Vancheri C, Wijsenbeek M, Antoniou K, Rivera P, Bonella F, Renzoni E, Anne-Marie A-M, Vicens-Zygmunt V, Suarez-Cuartin G, et al (2020). Monounsaturated Fatty Acid diet associates less gastrointestinal adverse events of pirfenidone: phase IV clinical trial. ERS International Congress 2020 abstracts.
Fox L, Mcleod L, Russell A-M, Edwards C, O'Reilly K (2020). Single-arm observational study of a mobile app + home spirometry in idiopathic pulmonary fibrosis. ERS International Congress 2020 abstracts.
Russell A, Shone A, Love M, Shanagher D, Byrne I, Fox L, Korn B, Doyle A, Cassidy N (2019). A World Cafe Approach to Palliative Care and Planning for the Future in Fibrotic Lung Disease.  Author URL.
Maher T, Cottin V, Russell A-M, Corte T, Hammerl P, Michael A, Rohr KB, Quaresma M, Stowasser S, Noth I, et al (2019). Correlation between home and clinic spirometry in subjects with IPF: results from the INMARK trial.  Author URL.
Russell A-M, Datta A, Newell K, Jones S, Conway J, Saktkoo LA, Wickremasinghe M (2019). Development of a patient reported experience measure (PREM) for idiopathic pulmonary fibrosis (IPF).  Author URL.
van Manen MJG, Birring SS, Vancheri C, Odink AE, Hussain B, Vindigni V, Renzoni E, Russell A-M, Wapenaar M, Cottin V, et al (2019). Predictors of objective cough in patients with idiopathic pulmonary fibrosis (IPF).  Author URL.
Cassidy N, O'Dowd G, McGowan M, Shone T, Russell A-M (2018). Evaluation of a World Cafe Forum on Palliative Care and Planning for the Future.  Author URL.
Fleming S, Firouzi A, Farquhar M, Tsipouri V, Visca D, Mori L, Canu S, Hogben CR, Kokosi M, Kouranos V, et al (2018). Experiences of Supplemental Ambulatory Oxygen for Patients with Fibrotic Lung Disease: Qualitative Evidence from the Mixed Method AmbOx Trial.  Author URL.
Walsh S, Cahill T, Edwards C, Costello E, Walsh J, Russell A, O'Regan AW (2018). Patient-Reported Monitoring of Symptoms and Spirometry Via the patientMpower Platform in Idiopathic Pulmonary Fibrosis.  Author URL.
Russell A, Wickremasinghe M, Saketkoo L, Borril Z, Fletcher S, Adamali HI, Wells AU, Maher TM, Renzoni EA, Fleming S, et al (2018). Preliminary Testing of the Idiopathic Pulmonary Fibrosis Patient Reported Outcome Measure (IPF PRoM).  Author URL.
Russell AM, Wickremasinghe M, Renzoni E, Adamali H, Borril Z, Fletcher S, Maher TM, Kwong GNM, Saketkoo LA, Fleming S, et al (2018). THE IDIOPATHIC PULMONARY FIBROSIS PATIENTS REPORTED OUTCOME MEASURE (IPF-PROM) IS RELIABLE AND VALID FOR USE IN POPULATIONS WITH IPF.  Author URL.
Edwards C, Cassidy N, Costello E, Russell A-M (2017). A longitudinal approach to supported self-management: sustainability of the idiopathic interstitial pneumonia (IIP) electronic health journal (patientMpower) with integrated home spirometry.  Author URL.
Edwards C, Cassidy N, Costello E, Russell A-M (2017). A longitudinal approach to supported self-management: sustainability of the idiopathic interstitial pneumonia (IIP) electronic health journal (patientMpower) with integrated home spirometry.  Author URL.
Visca D, Mori L, Tsipouri V, Canu S, Bonini M, Pavitt M, Fleming S, Firouzi A, Farquhar M, Leung E, et al (2017). AmbOx trial: does ambulatory oxygen improve quality of life in patients with fibrotic interstitial lung disease?.  Author URL.
Visca D, Mori L, Tsipouri V, Canu S, Bonini M, Pavitt M, Fleming S, Firouzi A, Farquhar M, Leung E, et al (2017). Ambox: a Randomised Controlled, Crossover Trial Evaluating the Effects of Ambulatory Oxygen on Health Status in Patients with Fibrotic Interstitial Lung Disease.  Author URL.
Russell A-M, Jones G, Saketkoo L, Doyle A-M, Sanderson T, D'Accord C, Adamali H, Borrill Z, Fletcher S, Wickremasinghe M, et al (2017). Development and Preliminary Testing of the Idiopathic Pulmonary Fibrosis Patient Reported Outcome Measure (ipf-Prom): Uk and Ireland Multi-Centre Study.  Author URL.
Mori L, Canu S, Visca D, Tsipouri V, Bonini M, Pavitt M, Fleming S, Firouzi A, Farquhar M, Leung E, et al (2017). PREDICTORS OF UPTAKE OF AMBULATORY OXYGEN ON COMPLETION OF THE AMBOX TRIAL, a STUDY TO ASSESS EFFECTS OF AMBULATORY OXYGEN ON QUALITY OF LIFE IN PATIENTS WITH FIBROTIC INTERSTITIAL LUNG DISEASE.  Author URL.
Russell A-M, Cave P, Taylor K, Lewis A, Hopkinson NS, Wells AU (2017). Rhythm and song: Breath management in Idiopathic Interstitial Pneumonias (IIP's). Pilot study.  Author URL.
Russell AM, Sonecha S, Datta A, Hewitt R, Howell I, Elliott A, Wickremasinghe M (2016). DEVELOPMENT OF PATIENT REPORTED EXPERIENCE MEASURE (PREM) FOR IDIOPATHIC PULMONARY FIBROSIS (IPF).  Author URL.
Hogben C, Renzoni E, Wells AU, Kokosi M, Chua F, Maher TM, Russell AM (2016). Development of pre-admission information for referrals with suspected interstitial lung disease to a specialist unit.  Author URL.
Russell A-M, Johnston KN, Yorke J, Williams MT (2016). Differences in Perceptual Experiences of Breathlessness and Impairment Between People with Moderate-Severe COPD in Australia and the United Kingdom.  Author URL.
Russell A-M, Johnston KN, Yorke J, Williams MT (2016). Dyspnoea-12 Scores Reported "these Days" Are Greater Than Those Reported "today": Differences in People with COPD, Asthma and Ild.  Author URL.
Russell A-M, Jones G, Sabella R, Cassidy N, Burge G, Lines S, Stanley L, Fletcher S, Weallans M, Bray M, et al (2016). Health status & impact of living with idiopathic pulmonary fibrosis (IPF): UK & Ireland Delphi survey.  Author URL.
Russell A-M, Scholand M, Snyder EA, Russell A, Burdett C, Doyle A-M, Lasky J, Renzoni E, Wells A, Saketkoo L, et al (2016). Impact, Survival, Symptoms and Management: Us and Uk Patient Perceptions of Living with Idiopathic Pulmonary Fibrosis.  Author URL.
Stock C, Bonini M, Kingston S, Lindahl GE, Russell A-M, Molyneaux PL, Saunders P, Kokosi MA, Sestini P, Wells AU, et al (2016). Muc5b and Tollip Variants: Association with Disease Progression and Survival in an Ipf Cohort.  Author URL.
Saketkoo L, Young J, Adell R, Karpinski AC, Walker M, Russell A-M (2016). Perceptions of a Modified Mindfulness Training (mt) Program in Sarcoidosis.  Author URL.
Visca D, Fleming S, Firouzi A, Farquhar M, Hopkinson N, Hogben C, Banya W, Cullinan P, De Lauretis A, Kokosi M, et al (2016). Randomised controlled, crossover trial to evaluate the effects of ambulatory oxygen on health status in patients with fibrotic lung disease.  Author URL.
Russell A-M, Scholand M, Snyder EA, Doyle A-M, Russell A, Burdett C, Lasky J, Saketkoo LA (2016). Trajectory of Symptom Burden, Impact and Survival in an Idiopathic Pulmonary Fibrosis Population.  Author URL.
Maher TM, Molina-Molina M, Russell A-M, Bonella F, Jouneau S, Ripamonti E, Axmann J, Vancheri C (2016). UNMET NEEDS IN THE TREATMENT OF IDIOPATHIC PULMONARY FIBROSIS (IPF) - INSIGHTS FROM PATIENT CHART REVIEW IN FIVE EUROPEAN COUNTRIES.  Author URL.
Russell A-M, Doyle A-M, Burdett C, Gane J, Aden Z, Fleming S, Cullinan P (2015). A patient centred approach to the development of a patient reported outcome measure (PRoM) in idiopathic pulmonary fibrosis (IPF).  Author URL.
Russell A-M, Doyle A, Fleming S, Burdett C, Ross D, Aden Z, Maher TM, Cullinan P (2015). Development of a Patient Reported Outcome Measure ( prom) in Idiopathic Pulmonary Fibrosis (ipf): Incorporating a Research Partnership with Patients.  Author URL.
Russell A-M, Sanderson T, Wells AU, Fleming S, Maher TM, Cullinan P (2015). Development of a Patient Reported Outcome Measure (prom) in Idiopathic Pulmonary Fibrosis (ipf): an Iterative Process.  Author URL.
Saketkoo LA, Escorpizo R, Keen KJ, Fligelstone K, Birring SS, Lammi MR, Lasky JA, LeSage DR, Renzoni E, Russell AM, et al (2015). INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY, AND HEALTH (ICF) CORE SETS FOR CONNECTIVE TISSUE DISEASE INTERSTITIAL LUNG DISEASE (CTD-ILD) AND IDIOPATHIC PULMONARY FIBROSIS (IPF) - a NECESSARY MAP TO HEALTH CARE PROVISION IN THE ERA OF ICD-11.  Author URL.
Russell A-M, Sanderson T, Fleming S, Wells A, Maher T, Cullinan P (2015). Item generation for a patient reported outcome measure (PRoM) in idiopathic pulmonary fibrosis (IPF): Application of consensus methods.  Author URL.
Russell AM, Doyle AM, Ross D, Burdett C, Gane J, Fleming S, Aden Z, Maher TM, Cullinan P (2015). PATIENT AND CARER CO-INVESTIGATORS: SHARED EXPERIENCES OF a RESEARCH STEERING GROUP FROM THE IDIOPATHIC PULMONARY FIBROSIS PATIENT REPORTED OUTCOME MEASURE (IPF-PROM) STUDY.  Author URL.
Cove J, Russell AM, Wright J, Hogben C, Kokosi M, Mak V, Chua F, Wells A, Doyle AM, Renzoni E, et al (2015). PILOT STUDY TO TEST THE FEASIBILITY OF a PSYCHOLOGICAL SUPPORT WORKSHOP FOR PATIENTS NEWLY DIAGNOSED WITH IDIOPATHIC PULMONARY FIBROSIS (IPF) AND THEIR FAMILIES.  Author URL.
Doyle A-M, Burdett C, Gane J, Aden Z, Russell A-M (2015). Psychological distress in UK patients with idiopathic pulmonary fibrosis; use of emotion thermometers interpreted within a biopsychosocial constructionist framework.  Author URL.
Saketkoo L, Escorpizo R, Keen KJ, Fligelstone K, Lammi MR, LeSage D, Russell A-M, Birring SS, Sarver C, Varga J, et al (2015). The World Health Organization (who) International Classification of Functioning, Disability, and Health (icf) Core Sets for Connective Tissue Disease Interstitial Lung Disease (ctd-Ild) and Idiopathic Pulmonary Fibrosis (ipf) - a Necessary Map to Health Care Provision in the Era of Icd-11.  Author URL.
Russell AM, Sanderson T, Fleming S, Wells AU, Maher TMM, Cullinan TP (2014). DEVELOPMENT OF AN IDIOPATHIC PULMONARY FIBROSIS (IPF) PATIENT REPORTED OUTCOME MEASURE (PROM): AN ITERATIVE APPROACH TO ITEM GENERATION.  Author URL.
Escorpizo R, Keen KJ, Fligelstone K, Lammi MR, LeSage D, Russell A-M, Birring S, Sarver C, Varga J, Distler O, et al (2014). International Classification of Functioning, Disability, and Health (ICF) Core Sets for Connective Tissue Disease Interstitial Lung Disease (CTD-ILD) and Idiopathic Pulmonary Fibrosis (IPF) - a Necessary Map to Health Care Provision in the Era of ICD-11.  Author URL.
Russell AM, Vancheri C, Maronati M, Giot C (2013). A QUALITATIVE EUROPEAN SURVEY OF PATIENTS PERCEPTIONS OF CURRENT MANAGEMENT OF IDIOPATHIC PULMONARY FIBROSIS.  Author URL.
Russell A-M, Fraser U, Molyneaux P, Wells A, Renzoni E, Lukey P, Maher T (2013). Quality of life measures in patients with idiopathic pulmonary fibrosis.  Author URL.
Russell A-M, Molyneaux PL, Wells AU, Renzoni E, Luley P, Maher TM (2013). Symptom Measures in Patients with Idiopathic Pulmonary Fibrosis.  Author URL.
Russell A-M, Molyneaux PL, Lukey PT, Fraser UH, Renzoni EA, Wells A, Maher TM (2012). Daily Hand-Held Spirometry for the Monitoring of Patients with Idiopathic Pulmonary Fibrosis. American Thoracic Society 2012 International Conference, May 18-23, 2012 • San Francisco, California.
Russell A-M, Molyneaux PL, Adamali HI, Fraser UH, Lukey PT, Wells A, Maher T (2012). Symptom Related Quality of Life Measures in Patients with Idiopathic Pulmonary Fibrosis. American Thoracic Society 2012 International Conference, May 18-23, 2012 • San Francisco, California.
Adamali HI, Delgado CM, Stock C, Lindhal GE, Molyneaux P, Russell A-M, Wells A, Renzoni EA, Maher T (2012). Telomere (TL) shortening is associated with disease severity in scleroderma (SSC) associated interstitial lung disease (ILD).  Author URL.
Yorke J, Moosavi SH, Russell AM, Jones PW (2009). Does Slight Variation in Situational Wording on Breathlessness Questionnaires Make a Difference?.  Author URL.
Yorke J, Moosavi SH, Russell AM, Jones PW (2009). Validity and Reliability of the Dyspnoea-12.  Author URL.

Publications by year


In Press

Edwards C, Costello E, Cassidy N, Vick B, Russell A-M (In Press). The utility of an electronic health journal with home spirometry in a real world population of people with fibrotic lung conditions. Journal of Medical Internet Research

2021

Richards DA, Sugg HVR, Cockcroft E, Cooper J, Cruickshank S, Doris F, Hulme C, Logan P, Iles-Smith H, Melendez-Torres GJ, et al (2021). COVID-NURSE: evaluation of a fundamental nursing care protocol compared with care as usual on experience of care for noninvasively ventilated patients in hospital with the SARS-CoV-2 virus—protocol for a cluster randomised controlled trial. BMJ Open, 11(5), e046436-e046436. Abstract.  Full text.
Saketkoo LA, Russell A-M, Jensen K, Mandizha J, Tavee J, Newton J, Rivera F, Howie M, Reese R, Goodman M, et al (2021). Health-Related Quality of Life (HRQoL) in Sarcoidosis: Diagnosis, Management, and Health Outcomes. Diagnostics, 11(6), 1089-1089. Abstract.
Noth I, Cottin V, Chaudhuri N, Corte TJ, Johannson KA, Wijsenbeek M, Jouneau S, Michael A, Quaresma M, Rohr KB, et al (2021). Home spirometry in patients with idiopathic pulmonary fibrosis: data from the INMARK trial. European Respiratory Journal, 2001518-2001518. Abstract.
Castro-Sanchez E, Russell A-M, Dolman L, Wells M (2021). What place does nurseā€led research have in the COVIDā€19 pandemic?. International Nursing Review, 1-5.

2020

Fox L, McLeodl L, Russell A, Edwards C, O'Reilly KMA (2020). An Observational Study of Self-Monitoring of Spirometry and Symptoms via a Mobile Electronic Health Journal in Usual Care of Patients with Idiopathic Pulmonary Fibrosis.  Author URL.
Saketkoo LA, Alexanderson H, Lammi MR, LeSage D, Jensen K, Scholand MB, Volkmann ER, Russell AM (2020). An ode to the primal tonic of dance—congratulating the Life of Breath project. The Lancet Respiratory Medicine, 8(12), e90-e91.
Kim JW, Olive S, Jones S, Thillai M, Russell A-M, Johnson MJ, Wilson A (2020). Interstitial lung disease and specialist palliative care access: a healthcare professionals survey. BMJ Supportive & Palliative Care Abstract.
Russell A (2020). Letter from the. UK. Respirology, 25(12), 1325-1327.
Russell A, Wickremasinghe M, Aul R, Datta A, Saketkoo L, Wells M (2020). Measuring Patient Activation Measurement in Patients Diagnosed with Interstitial Lung Disease (ILD) to Inform Enabling and Compassionate Care.  Author URL.
Russell A-M, Aul R, Datta A, Wickremasinghe M (2020). Measuring patient activation in an interstitial lung disease (ILD) population: an exploratory study. ERS International Congress 2020 abstracts.
Fontanilles E, Vancheri C, Wijsenbeek M, Antoniou K, Rivera P, Bonella F, Renzoni E, Anne-Marie A-M, Vicens-Zygmunt V, Suarez-Cuartin G, et al (2020). Monounsaturated Fatty Acid diet associates less gastrointestinal adverse events of pirfenidone: phase IV clinical trial. ERS International Congress 2020 abstracts.
Drake TM, Docherty AB, Harrison EM, Quint JK, Adamali H, Agnew S, Babu S, Barber CM, Barratt S, Bendstrup E, et al (2020). Outcome of Hospitalization for COVID-19 in Patients with Interstitial Lung Disease. An International Multicenter Study. American Journal of Respiratory and Critical Care Medicine, 202(12), 1656-1665. Full text.
Saketkoo LA, Scholand MB, Lammi MR, Russell A-M (2020). Patient-reported outcome measures in systemic sclerosis–related interstitial lung disease for clinical practice and clinical trials. Journal of Scleroderma and Related Disorders, 5(2_suppl), 48-60. Abstract.  Full text.
Fox L, Mcleod L, Russell A-M, Edwards C, O'Reilly K (2020). Single-arm observational study of a mobile app + home spirometry in idiopathic pulmonary fibrosis. ERS International Congress 2020 abstracts.
Edwards C, Costello E, Cassidy N, Vick B, Russell A-M (2020). Use of the patientMpower App with Home-Based Spirometry to Monitor the Symptoms and Impact of Fibrotic Lung Conditions: Longitudinal Observational Study. JMIR mHealth and uHealth, 8(11), e16158-e16158. Abstract.

2019

Russell A, Shone A, Love M, Shanagher D, Byrne I, Fox L, Korn B, Doyle A, Cassidy N (2019). A World Cafe Approach to Palliative Care and Planning for the Future in Fibrotic Lung Disease.  Author URL.
Maher T, Cottin V, Russell A-M, Corte T, Hammerl P, Michael A, Rohr KB, Quaresma M, Stowasser S, Noth I, et al (2019). Correlation between home and clinic spirometry in subjects with IPF: results from the INMARK trial.  Author URL.
Russell A-M, Datta A, Newell K, Jones S, Conway J, Saktkoo LA, Wickremasinghe M (2019). Development of a patient reported experience measure (PREM) for idiopathic pulmonary fibrosis (IPF).  Author URL.
Moor CC, Wijsenbeek MS, Balestro E, Biondini D, Bondue B, Cottin V, Flewett R, Galvin L, Jones S, Molina-Molina M, et al (2019). Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey. ERJ Open Research, 5(4), 00124-2019. Abstract.
Lim RK, Humphreys C, Morisset J, Holland AE, Johannson KA (2019). Oxygen in patients with fibrotic interstitial lung disease: an international Delphi survey. European Respiratory Journal, 54(2), 1900421-1900421. Abstract.
van Manen MJG, Birring SS, Vancheri C, Odink AE, Hussain B, Vindigni V, Renzoni E, Russell A-M, Wapenaar M, Cottin V, et al (2019). Predictors of objective cough in patients with idiopathic pulmonary fibrosis (IPF).  Author URL.

2018

Russell AM, Olive S, Lines S, Murphy A, Hocking J, Newell K, Morris H, Harris E, Dixon C, Agnew S, et al (2018). Contemporary challenges for specialist nursing in interstitial lung disease. Breathe, 14(1), 36-41. Abstract.
Visca D, Mori L, Tsipouri V, Fleming S, Firouzi A, Bonini M, Pavitt MJ, Alfieri V, Canu S, Bonifazi M, et al (2018). Effect of ambulatory oxygen on quality of life for patients with fibrotic lung disease (AmbOx): a prospective, open-label, mixed-method, crossover randomised controlled trial. Lancet Respir Med, 6(10), 759-770. Abstract.  Author URL.
Cassidy N, O'Dowd G, McGowan M, Shone T, Russell A-M (2018). Evaluation of a World Cafe Forum on Palliative Care and Planning for the Future.  Author URL.
Fleming S, Firouzi A, Farquhar M, Tsipouri V, Visca D, Mori L, Canu S, Hogben CR, Kokosi M, Kouranos V, et al (2018). Experiences of Supplemental Ambulatory Oxygen for Patients with Fibrotic Lung Disease: Qualitative Evidence from the Mixed Method AmbOx Trial.  Author URL.
Saketkoo LA, Karpinski A, Young J, Adell R, Walker M, Hennebury T, Wickremasinghe M, Russell A-M (2018). Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis. ERJ Open Research, 4(2), 00085-2017.
Newell K, Smith K, Russell A-M (2018). Palliative and end of life care in idiopathic pulmonary fibrosis. Primary Health Care, 28(4), 27-35.
Walsh S, Cahill T, Edwards C, Costello E, Walsh J, Russell A, O'Regan AW (2018). Patient-Reported Monitoring of Symptoms and Spirometry Via the patientMpower Platform in Idiopathic Pulmonary Fibrosis.  Author URL.
Russell A, Wickremasinghe M, Saketkoo L, Borril Z, Fletcher S, Adamali HI, Wells AU, Maher TM, Renzoni EA, Fleming S, et al (2018). Preliminary Testing of the Idiopathic Pulmonary Fibrosis Patient Reported Outcome Measure (IPF PRoM).  Author URL.
Russell AM, Wickremasinghe M, Renzoni E, Adamali H, Borril Z, Fletcher S, Maher TM, Kwong GNM, Saketkoo LA, Fleming S, et al (2018). THE IDIOPATHIC PULMONARY FIBROSIS PATIENTS REPORTED OUTCOME MEASURE (IPF-PROM) IS RELIABLE AND VALID FOR USE IN POPULATIONS WITH IPF.  Author URL.

2017

Edwards C, Cassidy N, Costello E, Russell A-M (2017). A longitudinal approach to supported self-management: sustainability of the idiopathic interstitial pneumonia (IIP) electronic health journal (patientMpower) with integrated home spirometry.  Author URL.
Edwards C, Cassidy N, Costello E, Russell A-M (2017). A longitudinal approach to supported self-management: sustainability of the idiopathic interstitial pneumonia (IIP) electronic health journal (patientMpower) with integrated home spirometry.  Author URL.
Visca D, Mori L, Tsipouri V, Canu S, Bonini M, Pavitt M, Fleming S, Firouzi A, Farquhar M, Leung E, et al (2017). AmbOx trial: does ambulatory oxygen improve quality of life in patients with fibrotic interstitial lung disease?.  Author URL.
Visca D, Mori L, Tsipouri V, Canu S, Bonini M, Pavitt M, Fleming S, Firouzi A, Farquhar M, Leung E, et al (2017). Ambox: a Randomised Controlled, Crossover Trial Evaluating the Effects of Ambulatory Oxygen on Health Status in Patients with Fibrotic Interstitial Lung Disease.  Author URL.
Maher TM, Oballa E, Simpson JK, Porte J, Habgood A, Fahy WA, Flynn A, Molyneaux PL, Braybrooke R, Divyateja H, et al (2017). An epithelial biomarker signature for idiopathic pulmonary fibrosis: an analysis from the multicentre PROFILE cohort study. The Lancet Respiratory Medicine, 5(12), 946-955. Abstract.
Spruit MA, Burtin C, Langer D, Makonga J, Russell A-M, York J, Steenbruggen I (2017). Assembly 9: allied respiratory professionals. Breathe, 12(4), e113-e114.
Russell A-M, Jones G, Saketkoo L, Doyle A-M, Sanderson T, D'Accord C, Adamali H, Borrill Z, Fletcher S, Wickremasinghe M, et al (2017). Development and Preliminary Testing of the Idiopathic Pulmonary Fibrosis Patient Reported Outcome Measure (ipf-Prom): Uk and Ireland Multi-Centre Study.  Author URL.
van Manen MJG, Birring SS, Vancheri C, Vindigni V, Renzoni E, Russell A-M, Wapenaar M, Cottin V, Wijsenbeek MS (2017). Effect of pirfenidone on cough in patients with idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY JOURNAL, 50(4). Author URL.
Mori L, Canu S, Visca D, Tsipouri V, Bonini M, Pavitt M, Fleming S, Firouzi A, Farquhar M, Leung E, et al (2017). PREDICTORS OF UPTAKE OF AMBULATORY OXYGEN ON COMPLETION OF THE AMBOX TRIAL, a STUDY TO ASSESS EFFECTS OF AMBULATORY OXYGEN ON QUALITY OF LIFE IN PATIENTS WITH FIBROTIC INTERSTITIAL LUNG DISEASE.  Author URL.
Kreuter M, Bendstrup E, Russell A-M, Bajwah S, Lindell K, Adir Y, Brown CE, Calligaro G, Cassidy N, Corte TJ, et al (2017). Palliative care in interstitial lung disease: living well. LANCET RESPIRATORY MEDICINE, 5(12), 968-980. Author URL.
Russell A-M, Cave P, Taylor K, Lewis A, Hopkinson NS, Wells AU (2017). Rhythm and song: Breath management in Idiopathic Interstitial Pneumonias (IIP's). Pilot study.  Author URL.
Maher TM, Molina-Molina M, Russell A-M, Bonella F, Jouneau S, Ripamonti E, Axmann J, Vancheri C (2017). Unmet needs in the treatment of idiopathic pulmonary fibrosis-insights from patient chart review in five European countries. BMC PULMONARY MEDICINE, 17 Author URL.

2016

van Manen MJG, Birring SS, Vancheri C, Cottin V, Renzoni EA, Russell A-M, Wijsenbeek MS (2016). Cough in idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY REVIEW, 25(141), 278-286. Author URL.
Russell AM, Sonecha S, Datta A, Hewitt R, Howell I, Elliott A, Wickremasinghe M (2016). DEVELOPMENT OF PATIENT REPORTED EXPERIENCE MEASURE (PREM) FOR IDIOPATHIC PULMONARY FIBROSIS (IPF).  Author URL.
Russell A-M, Maher TM (2016). Daily Home Spirometry: a New Milestone in the Field of Pulmonary Fibrosis Reply. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 1034-1035. Author URL.
Russell A-M, Adamali H, Molyneaux PL, Lukey PT, Marshall RP, Renzoni EA, Wells AU, Maher TM (2016). Daily Home Spirometry: an Effective Tool for Detecting Progression in Idiopathic Pulmonary Fibrosis. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 989-997. Author URL.
Hogben C, Renzoni E, Wells AU, Kokosi M, Chua F, Maher TM, Russell AM (2016). Development of pre-admission information for referrals with suspected interstitial lung disease to a specialist unit.  Author URL.
Russell A-M, Johnston KN, Yorke J, Williams MT (2016). Differences in Perceptual Experiences of Breathlessness and Impairment Between People with Moderate-Severe COPD in Australia and the United Kingdom.  Author URL.
Russell A-M, Johnston KN, Yorke J, Williams MT (2016). Dyspnoea-12 Scores Reported "these Days" Are Greater Than Those Reported "today": Differences in People with COPD, Asthma and Ild.  Author URL.
Russell A-M, Jones G, Sabella R, Cassidy N, Burge G, Lines S, Stanley L, Fletcher S, Weallans M, Bray M, et al (2016). Health status & impact of living with idiopathic pulmonary fibrosis (IPF): UK & Ireland Delphi survey.  Author URL.
Russell A-M, Scholand M, Snyder EA, Russell A, Burdett C, Doyle A-M, Lasky J, Renzoni E, Wells A, Saketkoo L, et al (2016). Impact, Survival, Symptoms and Management: Us and Uk Patient Perceptions of Living with Idiopathic Pulmonary Fibrosis.  Author URL.
Stock C, Bonini M, Kingston S, Lindahl GE, Russell A-M, Molyneaux PL, Saunders P, Kokosi MA, Sestini P, Wells AU, et al (2016). Muc5b and Tollip Variants: Association with Disease Progression and Survival in an Ipf Cohort.  Author URL.
Saketkoo L, Young J, Adell R, Karpinski AC, Walker M, Russell A-M (2016). Perceptions of a Modified Mindfulness Training (mt) Program in Sarcoidosis.  Author URL.
Russell A-M, Ripamonti E, Vancheri C (2016). Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients' perspectives of the disease and treatment. BMC PULMONARY MEDICINE, 16 Author URL.
Visca D, Fleming S, Firouzi A, Farquhar M, Hopkinson N, Hogben C, Banya W, Cullinan P, De Lauretis A, Kokosi M, et al (2016). Randomised controlled, crossover trial to evaluate the effects of ambulatory oxygen on health status in patients with fibrotic lung disease.  Author URL.
Lewis A, Cave P, Stern M, Welch L, Taylor K, Russell J, Doyle A-M, Russell A-M, McKee H, Clift S, et al (2016). Singing for Lung Health-a systematic review of the literature and consensus statement. NPJ PRIMARY CARE RESPIRATORY MEDICINE, 26 Author URL.
Russell A-M, Scholand M, Snyder EA, Doyle A-M, Russell A, Burdett C, Lasky J, Saketkoo LA (2016). Trajectory of Symptom Burden, Impact and Survival in an Idiopathic Pulmonary Fibrosis Population.  Author URL.
Maher TM, Molina-Molina M, Russell A-M, Bonella F, Jouneau S, Ripamonti E, Axmann J, Vancheri C (2016). UNMET NEEDS IN THE TREATMENT OF IDIOPATHIC PULMONARY FIBROSIS (IPF) - INSIGHTS FROM PATIENT CHART REVIEW IN FIVE EUROPEAN COUNTRIES.  Author URL.
Russell A-M, Swigris JJ (2016). What's it like to live with idiopathic pulmonary fibrosis? Ask the experts. EUROPEAN RESPIRATORY JOURNAL, 47(5), 1324-1326. Author URL.

2015

Russell A-M, Doyle A-M, Burdett C, Gane J, Aden Z, Fleming S, Cullinan P (2015). A patient centred approach to the development of a patient reported outcome measure (PRoM) in idiopathic pulmonary fibrosis (IPF).  Author URL.
Russell AM (2015). Care planning in idiopathic pulmonary fibrosis. Nursing Times, 111(18), 20-22. Abstract.
Russell A-M, Doyle A, Fleming S, Burdett C, Ross D, Aden Z, Maher TM, Cullinan P (2015). Development of a Patient Reported Outcome Measure ( prom) in Idiopathic Pulmonary Fibrosis (ipf): Incorporating a Research Partnership with Patients.  Author URL.
Russell A-M, Sanderson T, Wells AU, Fleming S, Maher TM, Cullinan P (2015). Development of a Patient Reported Outcome Measure (prom) in Idiopathic Pulmonary Fibrosis (ipf): an Iterative Process.  Author URL.
Saketkoo LA, Escorpizo R, Keen KJ, Fligelstone K, Birring SS, Lammi MR, Lasky JA, LeSage DR, Renzoni E, Russell AM, et al (2015). INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY, AND HEALTH (ICF) CORE SETS FOR CONNECTIVE TISSUE DISEASE INTERSTITIAL LUNG DISEASE (CTD-ILD) AND IDIOPATHIC PULMONARY FIBROSIS (IPF) - a NECESSARY MAP TO HEALTH CARE PROVISION IN THE ERA OF ICD-11.  Author URL.
Russell A-M (2015). Idiopathic pulmonary fibrosis: Care Standards. Nursing Times, 111:18, 23-25.
Russell AM (2015). Interstitial pulmonary fibrosis: Care standards. Nursing Times, 111(18), 16-17. Abstract.
Russell A-M, Sanderson T, Fleming S, Wells A, Maher T, Cullinan P (2015). Item generation for a patient reported outcome measure (PRoM) in idiopathic pulmonary fibrosis (IPF): Application of consensus methods.  Author URL.
Jenkins RG, Simpson JK, Saini G, Bentley JH, Russell A-M, Braybrooke R, Molyneaux PL, McKeever TM, Wells AU, Flynn A, et al (2015). Longitudinal change in collagen degradation biomarkers in idiopathic pulmonary fibrosis: an analysis from the prospective, multicentre PROFILE study. LANCET RESPIRATORY MEDICINE, 3(6), 462-472. Author URL.
Lammi M, Baughman R, Birring S, Russell A-M, Ryu J, Scholand M, Distler O, LeSage D, Sarver C, Antoniou K, et al (2015). Outcome Measures for Clinical Trials in Interstitial Lung Diseases. Current Respiratory Medicine Reviews, 11(2), 163-174.
Russell AM, Doyle AM, Ross D, Burdett C, Gane J, Fleming S, Aden Z, Maher TM, Cullinan P (2015). PATIENT AND CARER CO-INVESTIGATORS: SHARED EXPERIENCES OF a RESEARCH STEERING GROUP FROM THE IDIOPATHIC PULMONARY FIBROSIS PATIENT REPORTED OUTCOME MEASURE (IPF-PROM) STUDY.  Author URL.
Cove J, Russell AM, Wright J, Hogben C, Kokosi M, Mak V, Chua F, Wells A, Doyle AM, Renzoni E, et al (2015). PILOT STUDY TO TEST THE FEASIBILITY OF a PSYCHOLOGICAL SUPPORT WORKSHOP FOR PATIENTS NEWLY DIAGNOSED WITH IDIOPATHIC PULMONARY FIBROSIS (IPF) AND THEIR FAMILIES.  Author URL.
Doyle A-M, Burdett C, Gane J, Aden Z, Russell A-M (2015). Psychological distress in UK patients with idiopathic pulmonary fibrosis; use of emotion thermometers interpreted within a biopsychosocial constructionist framework.  Author URL.
Saketkoo L, Escorpizo R, Keen KJ, Fligelstone K, Lammi MR, LeSage D, Russell A-M, Birring SS, Sarver C, Varga J, et al (2015). The World Health Organization (who) International Classification of Functioning, Disability, and Health (icf) Core Sets for Connective Tissue Disease Interstitial Lung Disease (ctd-Ild) and Idiopathic Pulmonary Fibrosis (ipf) - a Necessary Map to Health Care Provision in the Era of Icd-11.  Author URL.
Russell A-M, Sprangers MAG, Wibberley S, Snell N, Rose DM, Swigris JJ (2015). The need for patient-centred clinical research in idiopathic pulmonary fibrosis. BMC MEDICINE, 13 Author URL.

2014

Russell AM, Sanderson T, Fleming S, Wells AU, Maher TMM, Cullinan TP (2014). DEVELOPMENT OF AN IDIOPATHIC PULMONARY FIBROSIS (IPF) PATIENT REPORTED OUTCOME MEASURE (PROM): AN ITERATIVE APPROACH TO ITEM GENERATION.  Author URL.
Russell AM, Maher TM (2014). Detecting anxiety and depression in patients diagnosed with an interstitial lung disease. Can we do better?. RESPIROLOGY, 19(8), 1095-1096. Author URL.
Escorpizo R, Keen KJ, Fligelstone K, Lammi MR, LeSage D, Russell A-M, Birring S, Sarver C, Varga J, Distler O, et al (2014). International Classification of Functioning, Disability, and Health (ICF) Core Sets for Connective Tissue Disease Interstitial Lung Disease (CTD-ILD) and Idiopathic Pulmonary Fibrosis (IPF) - a Necessary Map to Health Care Provision in the Era of ICD-11.  Author URL.
Wuyts WA, Peccatori FA, Russell A-M (2014). Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models. European Respiratory Review, 23(132), 231-238.
Molyneaux PL, Cox MJ, Willis-Owen SAG, Mallia P, Russell KE, Russell A-M, Murphy E, Johnston SL, Schwartz DA, Wells AU, et al (2014). The Role of Bacteria in the Pathogenesis and Progression of Idiopathic Pulmonary Fibrosis. American Journal of Respiratory and Critical Care Medicine, 190(8), 906-913.

2013

Russell AM, Vancheri C, Maronati M, Giot C (2013). A QUALITATIVE EUROPEAN SURVEY OF PATIENTS PERCEPTIONS OF CURRENT MANAGEMENT OF IDIOPATHIC PULMONARY FIBROSIS.  Author URL.
Stock CJ, Sato H, Fonseca C, Banya WAS, Molyneaux PL, Adamali H, Russell A-M, Denton CP, Abraham DJ, Hansell DM, et al (2013). Mucin 5B promoter polymorphism is associated with idiopathic pulmonary fibrosis but not with development of lung fibrosis in systemic sclerosis or sarcoidosis. THORAX, 68(5), 436-441. Author URL.
Russell A-M, Fraser U, Molyneaux P, Wells A, Renzoni E, Lukey P, Maher T (2013). Quality of life measures in patients with idiopathic pulmonary fibrosis.  Author URL.
Russell A-M, Molyneaux PL, Wells AU, Renzoni E, Luley P, Maher TM (2013). Symptom Measures in Patients with Idiopathic Pulmonary Fibrosis.  Author URL.

2012

Russell A-M, Molyneaux PL, Lukey PT, Fraser UH, Renzoni EA, Wells A, Maher TM (2012). Daily Hand-Held Spirometry for the Monitoring of Patients with Idiopathic Pulmonary Fibrosis. American Thoracic Society 2012 International Conference, May 18-23, 2012 • San Francisco, California.
Adamali HI, Anwar MS, Russell A-M, Egan JJ (2012). Non-pharmacological treatment of idiopathic pulmonary fibrosis. Current Respiratory Care Reports, 1(4), 208-215.
Russell A-M, Molyneaux PL, Adamali HI, Fraser UH, Lukey PT, Wells A, Maher T (2012). Symptom Related Quality of Life Measures in Patients with Idiopathic Pulmonary Fibrosis. American Thoracic Society 2012 International Conference, May 18-23, 2012 • San Francisco, California.
Adamali HI, Delgado CM, Stock C, Lindhal GE, Molyneaux P, Russell A-M, Wells A, Renzoni EA, Maher T (2012). Telomere (TL) shortening is associated with disease severity in scleroderma (SSC) associated interstitial lung disease (ILD).  Author URL.

2011

Yorke J, Swigris J, Russell A-M, Moosavi SH, Kwong GNM, Longshaw M, Jones PW (2011). Dyspnea-12 is a Valid and Reliable Measure of Breathlessness in Patients with Interstitial Lung Disease. CHEST, 139(1), 159-164. Author URL.

2009

Yorke J, Moosavi SH, Russell AM, Jones PW (2009). Does Slight Variation in Situational Wording on Breathlessness Questionnaires Make a Difference?.  Author URL.
Yorke J, Moosavi SH, Russell AM, Jones PW (2009). Validity and Reliability of the Dyspnoea-12.  Author URL.

2008

Yorke J, Russell AM (2008). Interpreting the language of breathlessness. Nursing times, 104(23), 36-39. Abstract.

Anne-Marie_Russell Details from cache as at 2021-06-23 09:35:43

Refresh publications

External Engagement and Impact

Awards

Professional:

  • American Thoracic Society Fellow 2020 School – award for service and research endeavour

Patient & Public Involvement:

  • Irish Healthcare Awards 2019 Patient Organisation Project of the Year. Commendation for World Café Event on Palliative Care and Planning for the Future (ILFA)

Committee/panel activities

  • European Union IPF and Related Disorders Scientific Advisory Board: Chair Elect 09/2019

Terms of office served

  • ILD Interdisciplinary National Network Chair-elect: 10/2017 – 12/2019
  • American Thoracic Society Program Committee Chair-elect Nursing Assembly: 05/2018 – 2019
  • American Thoracic Society Awards Committee member 2017-19

Invited lectures

International

  1. Russell AM (13&15/04/2021) ‘Clinical Challenges for patients with ILD in COVID times’ and Factors affecting quality of life in patients with pulmonary fibrosis (plenary) In: Pulmonary Fibrosis International Academy for Nurses Virtual Meeting. 
  2. Russell AM (01/19) CTD-ILD: what is really relevant for our patients? In:  Prof. Dr. Jules van den Bosch Symposium VII, St. Antonius ILD Centre of Expertise, Nieuwegein. Netherlands
  3. Russell AM (11/18) Palliative care professional perspectives In: Holistic care in ILD: Defining palliation for patients and caregivers. And Bajwah S, Chaudhuri N and Rudilla D Russell AM,  (11/2018) Panel discussion and Q&A – How should palliative care be redefined in ILD? 8th Advancing ILD Research (AIR) Educational Meeting – Munich, Germany
  4. Russell AM (09/18) The ILD-nurse putting the focus on the patient: PROMs and PREMs In: Interstitial lung disease: an interdisciplinary approach. Scientific Symposium 169 European Respiratory Society Congress, Paris 
  5. Russell AM (05/18) Transitions across the continuum of care: Lessons from ILD In:  Yes, Your Pulmonary Patient Is Ready For Palliative Care. Scientific Symposium C88 American Thoracic Society International Conference, San Diego / USA
  6. Russell AM (03/18) Palliative care and end of life management for IPF patients In: Fergus Goodbody Memorial Lecture & Respiratory Masterclass; Royal College of Physicians Ireland  https://www.youtube.com/watch?v=Tcy3j5H7HMg

National

  1. Russell AM (08/05/2021) ‘Measuring What Matters: Patient Centred Outcomes in IPF’ Exeter Undergraduate National Respiratory Medicine Conference| Doctors Academy 
  2. Russell AM (03/19) Palliative Care for the patient with Idiopathic Pulmonary Fibrosis (IPF): A nursing update for Scotland and Northern Ireland. Grand Central Hotel, Glasgow
  3. Russell AM (11/18) PROs in IPF In: Northern ILD Network Meeting Double Tree Hilton Hotel, Leeds
  4. Russell AM (09/18) Research Challenges and experiences across the spectrum. In: North West London Research Symposium for Health Professions. AHSC Imperial College, London
  5. Russell AM (06/18) Effective Patient Communication In: Sixth annual Advancing in IPF Research (AIR) meeting Manchester / UK

Supervision / Group

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