Using Patient Reported Outcome Measures (PROMs) for improving the management of chronic conditions

What are PROMs?

Patient Reported Outcome Measures (PROMs) are questionnaires completed by patients to rate their own health. PROMs can be used for making sure that patients' needs and priorities are properly taken into account when making decisions about their health care. 

Currently PROMs are used to measure health gain for patients undergoing specific surgical procedures (for example hip and knee replacements) but there is little evidence for their use in general practice, where they are not routinely used. 

PROMs have the potential to improve the quality of healthcare people receive at their GP surgery, and promote a more patient-orientated service. For patients with multiple conditions they could be helpful for prioritising their health issues, aligning the views of patients and professionals. However, reseearch is needed to test the feasibility of this. 

The work we do

We conduct applied and translational research into the uses of PROMs. Translational research aims at increasing the scale and speed of progress from scientific discovery to clinical benefit (from a market perspective, turning early-stage innovations into new health products), and our research in PROMs specifically aims at bridging the gap between our developments in methods for the measurement of patient reported outcomes and patient centred safety assessments and its routine implementation in clinical practice.  Our research on the development of a classification system for PROMs, a new tool for assessing the quality of these instruments (EMPRO), and our contribution to the development of on-line PROMs libraries are all aimed at facilitating uptake of PROMs in clinical practice.

Recent and ongoing collaboration in this area include the European Observatory of Health Systems and Policies, the OECD PaRIS Initiative, and the International Consortium for Health Outcomes Measurement (ICHOM).

Projects

Ongoing projects

Overall Adult Health Outcomes Standard Set. International Consortium for Health Outcomes Measurement (ICHOM). Chair of panel: Jose M Valderas. 

Using Patient Reported Outcome Measures (PROMs) for optimising interventional treatment of lateral epicondylar tendonopathy. British Elbow and Shoulder Society (BESS) and Royal Devon and Exeter Hospital - Small Grants award. 01/03/2016-28/02/2018. PIs Prof. Jose M Valderas and Mr Jonathan Evans

Risk-benefit and costs of unicompartmental (compared to total) knee replacement for patients with multiple co-morbidities: a non-randomised study and different novel approaches to minimise confounding. NIHR HTA. 1/2/2017 (24 months) PI Dr Daniel Prieto-Alhambra, University of Oxford, UK

Development and validation of the English version of the short form of the Arterial Hypertension Quality of Life Questionnaire (Mini-CHAL). The Gawthorn Cardiac Trust. Andrew Jordan.

The effect of chronobiology on Patient Reported Outcome Measures (PROMs) in patients with chronic health conditions. University of Exeter. PI Prof. Jose M Valderas

Use of PROMs in general practice in the management of individuals with multimorbidity. University of Exeter. PI Prof. Jose M Valderas

Routine provision of information on Patient Reported Outcome Measures (PROMs) to healthcare providers and patients in clinical practice: a Cochrane systematic review of the literature. University of Exeter. PI Prof. Jose M Valderas.

Meta-synthesis of perceptions of patients and health professionals on the use of Patient Reported Outcome Measures (PROMs) in clinical practice. University of Exeter. PI Prof. Jose M Valderas.

Sytematic review of Minimal Important Difference for selected Patient Reported Outcome Measures (PROMs) in asthma, COPD, depression, diabetes, heart failure and osetoarthritis for informing clinical decision making. University of Exeter. PI Mrs. Jaheeda B. Gangannagaripalli

Systematic review of indvidualised Patient Reported Outcome Measures (PROMs). University of Exeter. PI Mrs. Jaheeda B. Gangannagaripalli

Development of an indidvidualisation module for the Evaluation of the Measurement Properties of Patient Reported Outcomes (EMPRO) tool. University of Exeter. PI Dr. Ian Porter

Completed projects

Cross-national invariance in the mesaurement of general self-reported health using the short form PROMIS-29 across nationally representative samples in Germany, France and the UK. Centre Virchow-Villerme. Co-PI: Prof Dr Matthias Rose, La Charite University of Berlin and Prof Alain Leplege, France. 1/1/2015-31/12/2016

Metrics of Person Centred Care Metrics for LTCs, MLTc and for those at the end of their life. NHS England. PI Dr Helen Lloyd, University of Plymouth, UK. 01/2/2016-31/08/2016

Development of two short versions of the Patient Reported Experiences and Outcomes of Patient Safety (PREOS-PC). University of Nottingham. PI Prof. Jose M Valderas. 15/04/2016-15/09/2016.

The use of Patient Reported Outcome Measures (PROMs) in improving primary care for people with multi-morbidity. Clinician Scientist Award. National Institute for Health Research, Department of Health, UK. PI Prof. Jose M Valderas. 01/3/2011-29/2/2016

Functionality and feedback: A realist synthesis of the collation, interpretation and utilisation of PROMs data to improve patient care. NIHR Service Delivery and Organisation Programme.PI: Dr Joanne Greenhalgh, University of Leeds, UK. 1/1/2014-1/7/2015

Validating patient-reported outcome measures (PROMs) in chronic kidney disease (CKD) patients at primary care setting. NIHR School for Primary Care Research. PI: Dr Yaling Yen, University of Oxford, UK. 1/11/2013-31/7/2015

Information and value-based commissioning. NIHR SDO Programme. PI Prof Barry McCormick, University of Oxford, UK. 2012-2014.

Developing, testing and implementing the NSPCR Patient Safety Toolkit in general practices in England. NIHR School for Primary Care Research. PI Prof. Tony Avery, University of Nottingham, UK. 01/10/2011-31/12/2013

Partners

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