COLLEGE OF MEDICINE AND HEALTH
Medicine, Nursing and Allied Health Professions

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 Anne-Marie Russell

Anne-Marie Russell

Senior Lecturer (E&R)

 South Cloisters 

 

South Cloisters, University of Exeter, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK

Overview

Anne-Marie has developed an interest in symptom burden, patient reported outcome measures specifically in interstitial lung diseases (ILDs) and patient centered methodologies. Combining Advanced Clinical Practice with undergraduate and postgraduate teaching and research from 2004 through to 2010, Anne-Marie joined the Royal Brompton hospital in 2010 to further her understanding of what was then a rare ILD, Idiopathic Pulmonary Fibrosis (IPF), a progressive, life limiting condition with a variable disease trajectory. As a clinical researcher on the PROFILE study, a longitudinal observational study to assess potential biomarkers to predict outcomes for people with IPF, Anne Marie explored the usefulness of a range of symptom and quality of life measures and home spirometry as a predictor of exacerbation.

In 2012 Anne Marie was awarded a NIHR clinical doctoral research fellowship. She completed a part time PhD at the National Heart and Lung Institute Imperial College London, developing and testing a patient-reported outcome measure for patients with IPF (IPF-PROM© Imperial College London 2018 www.innovahealthtec.com). The 12-item IPF-PROM is undergoing further validation in UK; Eire; and US IPF populations; it has been translated into Danish, German, Spanish and Portuguese and is incorporated into the ILD-Care Information Exchange electronic portal at Imperial College Healthcare Trust. Anne Marie completed post-doctoral research at Imperial College Healthcare Trust exploring the usefulness of Patient Activation Measures in people with Interstitial Lung Diseases (ILD) and is continuing the development and testing of an ILD specific Patient Reported Experience Measure (PREM).

Anne-Marie represents ILD nursing interests at international committees and is the scientific advisory board lead for the EU-IPFF. She regularly conducts peer review. Joining the Academy of Nursing at the University of Exeter in 2020 Anne-Marie is working with Professor David Richards on the COVID NURSE study that will impact patient experience, care quality, patients’ ability to manage day to day activities and treatment outcomes.

Qualifications

  • PhD Imperial College London
  • MSc University of Huddersfield
  • BSc (hons) University West London
  • BSc (hons) Brunel University
  • Post Graduate Certificate in Education
  • Post Graduate Certificate in Family Therapy & Systemic Practice
  • American Thoracic Society Fellow

Research

Research interests

Anne-Marie collaborates on studies relating to fibrotic lung conditions, patient-centeredness, mixed qualitative and quantitative methods particularly consensus approaches and psychometrics for health instrument development and assessment. Anne-Marie’s interests have widened beyond IPF to include all interstitial lung diseases and caregiver burden. With a core focus on measuring what matters to patients so that outcomes and experiences, particularly PROMs and PREMs are authentic and meaningful.

Patient-centred approaches include working with patients as research partners from conception through to study design, delivery and outputs.  Anne-Marie is working with the University’s Exeter Patients in Collaboration for pulmonary fibrosis research group (EPIC) who guide collective and interdisciplinary research endeavours, and with patient partners and research steering groups within the Academy of Nursing.

Anne-Marie is interested in non-pharmacological approaches to palliation of symptoms and has undertaken service development projects to explore the impact of singing techniques and mindfulness for breath management in patients with ILD. She contributes to the collective endeavours of the Respiratory Medicine research group in the College of Medicine & Health.

Research projects

Co-investigator (2020): COVID-NURSE study University of Exeter (open) PI: D Richards

Co-investigator (2020): Patient Perspectives in Living with Fibrotic lung conditions in COVID Times Tulane University | New Orleans. (Recruiting) PI: LA Saketkoo

Co-investigator (2020): Validation of the Mawdsley Questionnaire in Systemic Sclerosis-associated calcinosis. Tulane University | New Orleans. (Recruiting) PI: LA Saketkoo

Chief-Investigator: (2019) An observational study to explore the validity and appropriateness of the generic Patient Activation Measure (PAM) in a population diagnosed with Interstitial Lung Disease. Imperial College Healthcare NHS Trust | London. (in evaluation) PI: AM Russell

Co-investigator: (2019) An exploration of attitudes, beliefs and experiences of patients and GP’s, on SABA and ICS prescription and adherence. NHLI Imperial College | London (in ethical review). PI: J Quint

Co-investigator: (2019) Development of Airway Absorption Sampling Methods for Biomarker Assessment in Idiopathic Pulmonary Fibrosis (IPF) Imperial College |London PI: T Hansell

Co-investigator: (2019) Compassion Cultivation Skills Training (CCT) in Medicine: Controlled Skill-building Intervention Trial in Pulmonary Critical Care (PCC) Fellows. Louisiana State University | New Orleans. (in evaluation) PI: LA Saketkoo

Co-investigator: (2018) An open label phase IV, multicentre, international, interventional study to evaluate the effect of diet on gastrointestinal adverse events in patients with IPF treated with Pirfenidone (MADIET) European Study UK IRAS ID: 245949 (in evaluation) PI: M Molina-Molina

Co-investigator: (2016) Development and Testing of a Patient Reported Experience Measure in Idiopathic Pulmonary Fibrosis (IPF-PREM study) utilising patient centred and mixed methodologies. Imperial college Healthcare NHS Trust. Validation open 2019. (Recruiting) PI: M Wickremasinghe

Publications

Key publications | Publications by category | Publications by year

Key publications


Russell A-M, Adamali H, Molyneaux PL, Lukey PT, Marshall RP, Renzoni EA, Wells AU, Maher TM (2016). Daily Home Spirometry: an Effective Tool for Detecting Progression in Idiopathic Pulmonary Fibrosis. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 989-997. Author URL.

Publications by category


Journal articles

Edwards C, Costello E, Cassidy N, Vick B, Russell A-M (In Press). The utility of an electronic health journal with home spirometry in a real world population of people with fibrotic lung conditions. Journal of Medical Internet Research
Saketkoo LA, Scholand MB, Lammi MR, Russell A-M (2020). Patient-reported outcome measures in systemic sclerosis–related interstitial lung disease for clinical practice and clinical trials. Journal of Scleroderma and Related Disorders, 5(2_suppl), 48-60. Abstract.
Moor CC, Wijsenbeek MS, Balestro E, Biondini D, Bondue B, Cottin V, Flewett R, Galvin L, Jones S, Molina-Molina M, et al (2019). Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey. ERJ Open Research, 5(4), 00124-2019. Abstract.
Lim RK, Humphreys C, Morisset J, Holland AE, Johannson KA (2019). Oxygen in patients with fibrotic interstitial lung disease: an international Delphi survey. European Respiratory Journal, 54(2), 1900421-1900421. Abstract.
Russell AM, Olive S, Lines S, Murphy A, Hocking J, Newell K, Morris H, Harris E, Dixon C, Agnew S, et al (2018). Contemporary challenges for specialist nursing in interstitial lung disease. Breathe, 14(1), 36-41. Abstract.
Visca D, Mori L, Tsipouri V, Fleming S, Firouzi A, Bonini M, Pavitt MJ, Alfieri V, Canu S, Bonifazi M, et al (2018). Effect of ambulatory oxygen on quality of life for patients with fibrotic lung disease (AmbOx): a prospective, open-label, mixed-method, crossover randomised controlled trial. Lancet Respir Med, 6(10), 759-770. Abstract.  Author URL.
Saketkoo LA, Karpinski A, Young J, Adell R, Walker M, Hennebury T, Wickremasinghe M, Russell A-M (2018). Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis. ERJ Open Research, 4(2), 00085-2017.
Newell K, Smith K, Russell A-M (2018). Palliative and end of life care in idiopathic pulmonary fibrosis. Primary Health Care, 28(4), 27-35.
Maher TM, Oballa E, Simpson JK, Porte J, Habgood A, Fahy WA, Flynn A, Molyneaux PL, Braybrooke R, Divyateja H, et al (2017). An epithelial biomarker signature for idiopathic pulmonary fibrosis: an analysis from the multicentre PROFILE cohort study. The Lancet Respiratory Medicine, 5(12), 946-955. Abstract.
Spruit MA, Burtin C, Langer D, Makonga J, Russell A-M, York J, Steenbruggen I (2017). Assembly 9: allied respiratory professionals. Breathe, 12(4), e113-e114.
van Manen MJG, Birring SS, Vancheri C, Vindigni V, Renzoni E, Russell A-M, Wapenaar M, Cottin V, Wijsenbeek MS (2017). Effect of pirfenidone on cough in patients with idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY JOURNAL, 50(4). Author URL.
Kreuter M, Bendstrup E, Russell A-M, Bajwah S, Lindell K, Adir Y, Brown CE, Calligaro G, Cassidy N, Corte TJ, et al (2017). Palliative care in interstitial lung disease: living well. LANCET RESPIRATORY MEDICINE, 5(12), 968-980. Author URL.
Maher TM, Molina-Molina M, Russell A-M, Bonella F, Jouneau S, Ripamonti E, Axmann J, Vancheri C (2017). Unmet needs in the treatment of idiopathic pulmonary fibrosis-insights from patient chart review in five European countries. BMC PULMONARY MEDICINE, 17 Author URL.
van Manen MJG, Birring SS, Vancheri C, Cottin V, Renzoni EA, Russell A-M, Wijsenbeek MS (2016). Cough in idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY REVIEW, 25(141), 278-286. Author URL.
Russell A-M, Maher TM (2016). Daily Home Spirometry: a New Milestone in the Field of Pulmonary Fibrosis Reply. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 1034-1035. Author URL.
Russell A-M, Adamali H, Molyneaux PL, Lukey PT, Marshall RP, Renzoni EA, Wells AU, Maher TM (2016). Daily Home Spirometry: an Effective Tool for Detecting Progression in Idiopathic Pulmonary Fibrosis. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 989-997. Author URL.
Russell A-M, Ripamonti E, Vancheri C (2016). Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients' perspectives of the disease and treatment. BMC PULMONARY MEDICINE, 16 Author URL.
Lewis A, Cave P, Stern M, Welch L, Taylor K, Russell J, Doyle A-M, Russell A-M, McKee H, Clift S, et al (2016). Singing for Lung Health-a systematic review of the literature and consensus statement. NPJ PRIMARY CARE RESPIRATORY MEDICINE, 26 Author URL.
Russell A-M, Swigris JJ (2016). What's it like to live with idiopathic pulmonary fibrosis? Ask the experts. EUROPEAN RESPIRATORY JOURNAL, 47(5), 1324-1326. Author URL.
Russell A-M (2015). Idiopathic pulmonary fibrosis: Care Standards. Nursing Times, 111:18, 23-25.
Jenkins RG, Simpson JK, Saini G, Bentley JH, Russell A-M, Braybrooke R, Molyneaux PL, McKeever TM, Wells AU, Flynn A, et al (2015). Longitudinal change in collagen degradation biomarkers in idiopathic pulmonary fibrosis: an analysis from the prospective, multicentre PROFILE study. LANCET RESPIRATORY MEDICINE, 3(6), 462-472. Author URL.
Lammi M, Baughman R, Birring S, Russell A-M, Ryu J, Scholand M, Distler O, LeSage D, Sarver C, Antoniou K, et al (2015). Outcome Measures for Clinical Trials in Interstitial Lung Diseases. Current Respiratory Medicine Reviews, 11(2), 163-174.
Russell A-M, Sprangers MAG, Wibberley S, Snell N, Rose DM, Swigris JJ (2015). The need for patient-centred clinical research in idiopathic pulmonary fibrosis. BMC MEDICINE, 13 Author URL.
Russell AM, Maher TM (2014). Detecting anxiety and depression in patients diagnosed with an interstitial lung disease. Can we do better?. RESPIROLOGY, 19(8), 1095-1096. Author URL.
Wuyts WA, Peccatori FA, Russell A-M (2014). Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models. European Respiratory Review, 23(132), 231-238.
Molyneaux PL, Cox MJ, Willis-Owen SAG, Mallia P, Russell KE, Russell A-M, Murphy E, Johnston SL, Schwartz DA, Wells AU, et al (2014). The Role of Bacteria in the Pathogenesis and Progression of Idiopathic Pulmonary Fibrosis. American Journal of Respiratory and Critical Care Medicine, 190(8), 906-913.
Stock CJ, Sato H, Fonseca C, Banya WAS, Molyneaux PL, Adamali H, Russell A-M, Denton CP, Abraham DJ, Hansell DM, et al (2013). Mucin 5B promoter polymorphism is associated with idiopathic pulmonary fibrosis but not with development of lung fibrosis in systemic sclerosis or sarcoidosis. THORAX, 68(5), 436-441. Author URL.
Adamali HI, Anwar MS, Russell A-M, Egan JJ (2012). Non-pharmacological treatment of idiopathic pulmonary fibrosis. Current Respiratory Care Reports, 1(4), 208-215.
Yorke J, Swigris J, Russell A-M, Moosavi SH, Kwong GNM, Longshaw M, Jones PW (2011). Dyspnea-12 is a Valid and Reliable Measure of Breathlessness in Patients with Interstitial Lung Disease. CHEST, 139(1), 159-164. Author URL.

Publications by year


In Press

Edwards C, Costello E, Cassidy N, Vick B, Russell A-M (In Press). The utility of an electronic health journal with home spirometry in a real world population of people with fibrotic lung conditions. Journal of Medical Internet Research

2020

Saketkoo LA, Scholand MB, Lammi MR, Russell A-M (2020). Patient-reported outcome measures in systemic sclerosis–related interstitial lung disease for clinical practice and clinical trials. Journal of Scleroderma and Related Disorders, 5(2_suppl), 48-60. Abstract.

2019

Moor CC, Wijsenbeek MS, Balestro E, Biondini D, Bondue B, Cottin V, Flewett R, Galvin L, Jones S, Molina-Molina M, et al (2019). Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey. ERJ Open Research, 5(4), 00124-2019. Abstract.
Lim RK, Humphreys C, Morisset J, Holland AE, Johannson KA (2019). Oxygen in patients with fibrotic interstitial lung disease: an international Delphi survey. European Respiratory Journal, 54(2), 1900421-1900421. Abstract.

2018

Russell AM, Olive S, Lines S, Murphy A, Hocking J, Newell K, Morris H, Harris E, Dixon C, Agnew S, et al (2018). Contemporary challenges for specialist nursing in interstitial lung disease. Breathe, 14(1), 36-41. Abstract.
Visca D, Mori L, Tsipouri V, Fleming S, Firouzi A, Bonini M, Pavitt MJ, Alfieri V, Canu S, Bonifazi M, et al (2018). Effect of ambulatory oxygen on quality of life for patients with fibrotic lung disease (AmbOx): a prospective, open-label, mixed-method, crossover randomised controlled trial. Lancet Respir Med, 6(10), 759-770. Abstract.  Author URL.
Saketkoo LA, Karpinski A, Young J, Adell R, Walker M, Hennebury T, Wickremasinghe M, Russell A-M (2018). Feasibility, utility and symptom impact of modified mindfulness training in sarcoidosis. ERJ Open Research, 4(2), 00085-2017.
Newell K, Smith K, Russell A-M (2018). Palliative and end of life care in idiopathic pulmonary fibrosis. Primary Health Care, 28(4), 27-35.

2017

Maher TM, Oballa E, Simpson JK, Porte J, Habgood A, Fahy WA, Flynn A, Molyneaux PL, Braybrooke R, Divyateja H, et al (2017). An epithelial biomarker signature for idiopathic pulmonary fibrosis: an analysis from the multicentre PROFILE cohort study. The Lancet Respiratory Medicine, 5(12), 946-955. Abstract.
Spruit MA, Burtin C, Langer D, Makonga J, Russell A-M, York J, Steenbruggen I (2017). Assembly 9: allied respiratory professionals. Breathe, 12(4), e113-e114.
van Manen MJG, Birring SS, Vancheri C, Vindigni V, Renzoni E, Russell A-M, Wapenaar M, Cottin V, Wijsenbeek MS (2017). Effect of pirfenidone on cough in patients with idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY JOURNAL, 50(4). Author URL.
Kreuter M, Bendstrup E, Russell A-M, Bajwah S, Lindell K, Adir Y, Brown CE, Calligaro G, Cassidy N, Corte TJ, et al (2017). Palliative care in interstitial lung disease: living well. LANCET RESPIRATORY MEDICINE, 5(12), 968-980. Author URL.
Maher TM, Molina-Molina M, Russell A-M, Bonella F, Jouneau S, Ripamonti E, Axmann J, Vancheri C (2017). Unmet needs in the treatment of idiopathic pulmonary fibrosis-insights from patient chart review in five European countries. BMC PULMONARY MEDICINE, 17 Author URL.

2016

van Manen MJG, Birring SS, Vancheri C, Cottin V, Renzoni EA, Russell A-M, Wijsenbeek MS (2016). Cough in idiopathic pulmonary fibrosis. EUROPEAN RESPIRATORY REVIEW, 25(141), 278-286. Author URL.
Russell A-M, Maher TM (2016). Daily Home Spirometry: a New Milestone in the Field of Pulmonary Fibrosis Reply. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 1034-1035. Author URL.
Russell A-M, Adamali H, Molyneaux PL, Lukey PT, Marshall RP, Renzoni EA, Wells AU, Maher TM (2016). Daily Home Spirometry: an Effective Tool for Detecting Progression in Idiopathic Pulmonary Fibrosis. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 194(8), 989-997. Author URL.
Russell A-M, Ripamonti E, Vancheri C (2016). Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients' perspectives of the disease and treatment. BMC PULMONARY MEDICINE, 16 Author URL.
Lewis A, Cave P, Stern M, Welch L, Taylor K, Russell J, Doyle A-M, Russell A-M, McKee H, Clift S, et al (2016). Singing for Lung Health-a systematic review of the literature and consensus statement. NPJ PRIMARY CARE RESPIRATORY MEDICINE, 26 Author URL.
Russell A-M, Swigris JJ (2016). What's it like to live with idiopathic pulmonary fibrosis? Ask the experts. EUROPEAN RESPIRATORY JOURNAL, 47(5), 1324-1326. Author URL.

2015

Russell A-M (2015). Idiopathic pulmonary fibrosis: Care Standards. Nursing Times, 111:18, 23-25.
Jenkins RG, Simpson JK, Saini G, Bentley JH, Russell A-M, Braybrooke R, Molyneaux PL, McKeever TM, Wells AU, Flynn A, et al (2015). Longitudinal change in collagen degradation biomarkers in idiopathic pulmonary fibrosis: an analysis from the prospective, multicentre PROFILE study. LANCET RESPIRATORY MEDICINE, 3(6), 462-472. Author URL.
Lammi M, Baughman R, Birring S, Russell A-M, Ryu J, Scholand M, Distler O, LeSage D, Sarver C, Antoniou K, et al (2015). Outcome Measures for Clinical Trials in Interstitial Lung Diseases. Current Respiratory Medicine Reviews, 11(2), 163-174.
Russell A-M, Sprangers MAG, Wibberley S, Snell N, Rose DM, Swigris JJ (2015). The need for patient-centred clinical research in idiopathic pulmonary fibrosis. BMC MEDICINE, 13 Author URL.

2014

Russell AM, Maher TM (2014). Detecting anxiety and depression in patients diagnosed with an interstitial lung disease. Can we do better?. RESPIROLOGY, 19(8), 1095-1096. Author URL.
Wuyts WA, Peccatori FA, Russell A-M (2014). Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models. European Respiratory Review, 23(132), 231-238.
Molyneaux PL, Cox MJ, Willis-Owen SAG, Mallia P, Russell KE, Russell A-M, Murphy E, Johnston SL, Schwartz DA, Wells AU, et al (2014). The Role of Bacteria in the Pathogenesis and Progression of Idiopathic Pulmonary Fibrosis. American Journal of Respiratory and Critical Care Medicine, 190(8), 906-913.

2013

Stock CJ, Sato H, Fonseca C, Banya WAS, Molyneaux PL, Adamali H, Russell A-M, Denton CP, Abraham DJ, Hansell DM, et al (2013). Mucin 5B promoter polymorphism is associated with idiopathic pulmonary fibrosis but not with development of lung fibrosis in systemic sclerosis or sarcoidosis. THORAX, 68(5), 436-441. Author URL.

2012

Adamali HI, Anwar MS, Russell A-M, Egan JJ (2012). Non-pharmacological treatment of idiopathic pulmonary fibrosis. Current Respiratory Care Reports, 1(4), 208-215.

2011

Yorke J, Swigris J, Russell A-M, Moosavi SH, Kwong GNM, Longshaw M, Jones PW (2011). Dyspnea-12 is a Valid and Reliable Measure of Breathlessness in Patients with Interstitial Lung Disease. CHEST, 139(1), 159-164. Author URL.

Anne-Marie_Russell Details from cache as at 2020-09-21 17:08:36

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External Engagement and Impact

Awards

Professional:

  • American Thoracic Society Fellow 2020 School – award for service and research endeavour

Patient & Public Involvement:

  • Irish Healthcare Awards 2019 Patient Organisation Project of the Year. Commendation for World Café Event on Palliative Care and Planning for the Future (ILFA)

Committee/panel activities

  • European Union IPF and Related Disorders Scientific Advisory Board: Chair Elect 09/2019

Terms of office served

  • ILD Interdisciplinary National Network Chair-elect: 10/2017 – 12/2019
  • American Thoracic Society Program Committee Chair-elect Nursing Assembly: 05/2018 – 2019
  • American Thoracic Society Awards Committee member 2017-19

Invited lectures

International

  1. Russell AM (01/19) CTD-ILD: what is really relevant for our patients? In:  Prof. Dr. Jules van den Bosch Symposium VII, St. Antonius ILD Centre of Expertise, Nieuwegein. Netherlands
  2. Russell AM (11/18) Palliative care professional perspectives In: Holistic care in ILD: Defining palliation for patients and caregivers. And Bajwah S, Chaudhuri N and Rudilla D Russell AM,  (11/2018) Panel discussion and Q&A – How should palliative care be redefined in ILD? 8th Advancing ILD Research (AIR) Educational Meeting – Munich, Germany
  3. Russell AM (09/18) The ILD-nurse putting the focus on the patient: PROMs and PREMs In: Interstitial lung disease: an interdisciplinary approach. Scientific Symposium 169 European Respiratory Society Congress, Paris 
  4. Russell AM (05/18) Transitions across the continuum of care: Lessons from ILD In:  Yes, Your Pulmonary Patient Is Ready For Palliative Care. Scientific Symposium C88 American Thoracic Society International Conference, San Diego / USA
  5. Russell AM (03/18) Palliative care and end of life management for IPF patients In: Fergus Goodbody Memorial Lecture & Respiratory Masterclass; Royal College of Physicians Ireland  https://www.youtube.com/watch?v=Tcy3j5H7HMg

National

  1. Russell AM (03/19) Palliative Care for the patient with Idiopathic Pulmonary Fibrosis (IPF): A nursing update for Scotland and Northern Ireland. Grand Central Hotel, Glasgow
  2. Russell AM (11/18) PROs in IPF In: Northern ILD Network Meeting Double Tree Hilton Hotel, Leeds
  3. Russell AM (09/18) Research Challenges and experiences across the spectrum. In: North West London Research Symposium for Health Professions. AHSC Imperial College, London
  4. Russell AM (06/18) Effective Patient Communication In: Sixth annual Advancing in IPF Research (AIR) meeting Manchester / UK

Supervision / Group

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