Senior Lecturer (E&R)
South Cloisters, University of Exeter, St Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK
Anne-Marie has developed an interest in symptom burden, patient reported outcome measures specifically in interstitial lung diseases (ILDs) and patient centered methodologies. Combining Advanced Clinical Practice with undergraduate and postgraduate teaching and research from 2004 through to 2010, Anne-Marie joined the Royal Brompton hospital in 2010 to further her understanding of what was then a rare ILD, Idiopathic Pulmonary Fibrosis (IPF), a progressive, life limiting condition with a variable disease trajectory. As a clinical researcher on the PROFILE study, a longitudinal observational study to assess potential biomarkers to predict outcomes for people with IPF, Anne Marie explored the usefulness of a range of symptom and quality of life measures and home spirometry as a predictor of exacerbation.
In 2012 Anne Marie was awarded a NIHR clinical doctoral research fellowship. She completed a part time PhD at the National Heart and Lung Institute Imperial College London, developing and testing a patient-reported outcome measure for patients with IPF (IPF-PROM© Imperial College London 2018 www.innovahealthtec.com). The 12-item IPF-PROM is undergoing further validation in UK; Eire; and US IPF populations; it has been translated into Danish, German, Spanish and Portuguese and is incorporated into the ILD-Care Information Exchange electronic portal at Imperial College Healthcare Trust. Anne Marie completed post-doctoral research at Imperial College Healthcare Trust exploring the usefulness of Patient Activation Measures in people with Interstitial Lung Diseases (ILD) and is continuing the development and testing of an ILD specific Patient Reported Experience Measure (PREM).
Anne-Marie represents ILD nursing interests at international committees and is the scientific advisory board lead for the EU-IPFF. She regularly conducts peer review. Joining the Academy of Nursing at the University of Exeter in 2020 Anne-Marie is working with Professor David Richards on the COVID NURSE study that will impact patient experience, care quality, patients’ ability to manage day to day activities and treatment outcomes.
- PhD Imperial College London
- MSc University of Huddersfield
- BSc (hons) University West London
- BSc (hons) Brunel University
- Post Graduate Certificate in Education
- Post Graduate Certificate in Family Therapy & Systemic Practice
- American Thoracic Society Fellow
Anne-Marie collaborates on studies relating to fibrotic lung conditions, patient-centeredness, mixed qualitative and quantitative methods particularly consensus approaches and psychometrics for health instrument development and assessment. Anne-Marie’s interests have widened beyond IPF to include all interstitial lung diseases and caregiver burden. With a core focus on measuring what matters to patients so that outcomes and experiences, particularly PROMs and PREMs are authentic and meaningful.
Patient-centred approaches include working with patients as research partners from conception through to study design, delivery and outputs. Anne-Marie is working with the University’s Exeter Patients in Collaboration for pulmonary fibrosis research group (EPIC) who guide collective and interdisciplinary research endeavours, and with patient partners and research steering groups within the Academy of Nursing.
Anne-Marie is interested in non-pharmacological approaches to palliation of symptoms and has undertaken service development projects to explore the impact of singing techniques and mindfulness for breath management in patients with ILD. She contributes to the collective endeavours of the Respiratory Medicine research group in the College of Medicine & Health.
Co-investigator (2020): COVID-NURSE study University of Exeter (open) PI: D Richards
Co-investigator (2020): Patient Perspectives in Living with Fibrotic lung conditions in COVID Times Tulane University | New Orleans. (Recruiting) PI: LA Saketkoo
Co-investigator (2020): Validation of the Mawdsley Questionnaire in Systemic Sclerosis-associated calcinosis. Tulane University | New Orleans. (Recruiting) PI: LA Saketkoo
Chief-Investigator: (2019) An observational study to explore the validity and appropriateness of the generic Patient Activation Measure (PAM) in a population diagnosed with Interstitial Lung Disease. Imperial College Healthcare NHS Trust | London. (in evaluation) PI: AM Russell
Co-investigator: (2019) An exploration of attitudes, beliefs and experiences of patients and GP’s, on SABA and ICS prescription and adherence. NHLI Imperial College | London (in ethical review). PI: J Quint
Co-investigator: (2019) Development of Airway Absorption Sampling Methods for Biomarker Assessment in Idiopathic Pulmonary Fibrosis (IPF) Imperial College |London PI: T Hansell
Co-investigator: (2019) Compassion Cultivation Skills Training (CCT) in Medicine: Controlled Skill-building Intervention Trial in Pulmonary Critical Care (PCC) Fellows. Louisiana State University | New Orleans. (in evaluation) PI: LA Saketkoo
Co-investigator: (2018) An open label phase IV, multicentre, international, interventional study to evaluate the effect of diet on gastrointestinal adverse events in patients with IPF treated with Pirfenidone (MADIET) European Study UK IRAS ID: 245949 (in evaluation) PI: M Molina-Molina
Co-investigator: (2016) Development and Testing of a Patient Reported Experience Measure in Idiopathic Pulmonary Fibrosis (IPF-PREM study) utilising patient centred and mixed methodologies. Imperial college Healthcare NHS Trust. Validation open 2019. (Recruiting) PI: M Wickremasinghe
Publications by category
Publications by year
Anne-Marie_Russell Details from cache as at 2020-09-21 17:08:36
External Engagement and Impact
- American Thoracic Society Fellow 2020 School – award for service and research endeavour
Patient & Public Involvement:
- Irish Healthcare Awards 2019 Patient Organisation Project of the Year. Commendation for World Café Event on Palliative Care and Planning for the Future (ILFA)
- European Union IPF and Related Disorders Scientific Advisory Board: Chair Elect 09/2019
Terms of office served
- ILD Interdisciplinary National Network Chair-elect: 10/2017 – 12/2019
- American Thoracic Society Program Committee Chair-elect Nursing Assembly: 05/2018 – 2019
- American Thoracic Society Awards Committee member 2017-19
- Russell AM (01/19) CTD-ILD: what is really relevant for our patients? In: Prof. Dr. Jules van den Bosch Symposium VII, St. Antonius ILD Centre of Expertise, Nieuwegein. Netherlands
- Russell AM (11/18) Palliative care professional perspectives In: Holistic care in ILD: Defining palliation for patients and caregivers. And Bajwah S, Chaudhuri N and Rudilla D Russell AM, (11/2018) Panel discussion and Q&A – How should palliative care be redefined in ILD? 8th Advancing ILD Research (AIR) Educational Meeting – Munich, Germany
- Russell AM (09/18) The ILD-nurse putting the focus on the patient: PROMs and PREMs In: Interstitial lung disease: an interdisciplinary approach. Scientific Symposium 169 European Respiratory Society Congress, Paris
- Russell AM (05/18) Transitions across the continuum of care: Lessons from ILD In: Yes, Your Pulmonary Patient Is Ready For Palliative Care. Scientific Symposium C88 American Thoracic Society International Conference, San Diego / USA
- Russell AM (03/18) Palliative care and end of life management for IPF patients In: Fergus Goodbody Memorial Lecture & Respiratory Masterclass; Royal College of Physicians Ireland https://www.youtube.com/watch?v=Tcy3j5H7HMg
- Russell AM (03/19) Palliative Care for the patient with Idiopathic Pulmonary Fibrosis (IPF): A nursing update for Scotland and Northern Ireland. Grand Central Hotel, Glasgow
- Russell AM (11/18) PROs in IPF In: Northern ILD Network Meeting Double Tree Hilton Hotel, Leeds
- Russell AM (09/18) Research Challenges and experiences across the spectrum. In: North West London Research Symposium for Health Professions. AHSC Imperial College, London
- Russell AM (06/18) Effective Patient Communication In: Sixth annual Advancing in IPF Research (AIR) meeting Manchester / UK