Surveillance study

The surveillance study runs in collaboration with Child and Adolescent Psychiatry Surveillance System (CAPSS) and British Paediatric Surveillance Unit (BPSU). Each month these units will mail a tick box response card to all consultant paediatricians and child psychiatrists in the UK and ROI. Consultants will report whether, within the last month, they have seen a young person who needs ongoing medication for ADHD and is within six months of the age boundary for their service.

Reporting clinicians will be sent a baseline questionnaire to confirm the eligibility of the case, collect details about current treatment and comorbidity and collect minimal identifier details to allow linkage to follow up reports. Additionally, we will ask for contact details of the adult service to whom they referred, ask them to evaluate the different aspects of an optimal transition, and whether they are willing to be interviewed further.

After nine months, a follow-up questionnaire will be sent to each reporting clinician, for each reported case, to establish if the young person was successfully referred to adult services.

Detailed Ethics Information is available here

For any queries on the surveillance study, notifications or follow up questionnaires, please contact Helen Eke: H.E.Eke@exeter.ac.uk

 

News update:

March 2017

The surveillance period ended in November 2016, but data collection is ongoing and the team are busy chasing non-returned questionnaires for reported cases. The response rate is rising with 86% of questionnaires returned by BPSU clinicians, and 67% questionnaires returned by CAPSS clinicians. This is a great result, knowing that many of these cases are reported by a smaller number of clinicians, putting pressure on this group and increasing their workload. Please continue to return any outstanding questionnaires from the surveillance period November 2015-November 2016. The follow up questionnaires are also being sent and returned with a good response rate – 70% for BPSU and 69% for CAPSS. Please look out for these as they will continue to be sent monthly until August 2017.

Initial results from the surveillance period are being looked at which is very exciting. In general they indicate poor transition processes for young people with less than 25% of clinicians holding a transition planning meeting or having a handover period, and less than 50% having the referral to an adult mental health service accepted. Approximately 40% of referrals were to a specialist Adult ADHD service.

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