Halfway point
July 17
The first round of the surveillance study ended in November 2016 and we are now sending out requests for follow-up information on the cases reported 9 months after they were first seen, to find out if patients have transferred as intended to adult services.
Anna and Helen have conducted 130 qualitative interviews, and the team are progressing well with analysing all the information that has been shared with us. We are incredibly grateful to the young people, parents and clinicians for giving up their valuable time to talk frankly with Anna and Helen; and their personal impressions of how services, and transition between them, works in practice has been invaluable to us.
The first round of the mapping online survey was available from June to December 2016. We received just under 1,500 responses which was amazing, and we would like to send a huge ‘Thank you’ out to all those who completed the survey themselves and shared the link among their networks. Once all the data has been collated, we will produce resources to let interested parties know what is available to them in any given location nationally, and identify where they may be gaps. The survey will also run again at the beginning of 2018 to see how, if at all, the provision has changed, and we would be grateful if you could help us by taking the survey again then.
Throughout the first year and a half of the project, a working group of parents of young people with ADHD have supported the project team, attending meetings and advising on various elements of the study. Looking forward, we would like to extend the invitation to join the working group to any other young people, or parents of 16-25 year olds, with a confirmed diagnosis of ADHD. We will be looking predominantly at ways we can use to share the information we have to make it useful and accessible to young people and families, as well as influence future service provision. If you think this opportunity might interest you please contact catchadmin@exeter.ac.uk
Look out for updates via Twitter #catchusADHD as well as our website; and please re-tweet and share!