Qualitative study

In the qualitative stream, we will interview professionals, young people and parents to explore their views and experiences about the transition process. We will purposively sample 30 professionals: 15 from children’s services and 15 from adult services, with different prior experience with transition reported through the surveillance study. The recruitment of 60 to 75 young people and 25 parents will take place at five different geographical sites. As well as carers, we will target three different groups of young people and aim for 20 to 25 interviewees in each group:

1) young people attending children’s services prior to age of maximal drop out from services (14-16 years old),

2) young people who recently successfully transferred directly to adult services, and

3) young adults who dropped-out and re-entered the system in their early to mid-twenties.

The semi-structured interviews will follow a topic guide that will include the use of NICE guidelines and other established guidance that aims to promote optimal transitions, and reduce perceived barriers and facilitators to the transition of care for young people with ADHD out of children’s services.

Data analysis will be carried out using Framework Analysis.

News update:

March 2017

The second phase of recruitment for the qualitative study has now opened and we are looking forward to doing more interviews with young people and young adults diagnosed with ADHD!

Currently we have interviewed 71 participants from recruitment Groups 1-4 and 37 clinicians from children’s and adult services. We have now completed interim analysis for Group 1, Group 2, and Group 3, with Group 4 being planned for April. This analysis has provided guidance for the second phase of recruitment. Data saturation (no new information or themes are arising) was shown for Group 1 (age 14-16) and Group 4 (parents) and therefore we will not be recruiting any more participants to these groups in the second phase. However, Group 2 (just transitioned to adult services) and Group 3 (re-entering services) will now continue to be recruited until the end of May 2017 using the main research sites, and 6 of the additional sites that have volunteered and have the capacity to take part:

Original Sites

Berkshire Healthcare Foundation NHS Trust; Coventry & Warwickshire Partnership Trust; Devon Partnership NHS Trust; Devon Virgin Care; Nottinghamshire Healthcare NHS Foundation Trust; South London and Maudsley NHS Foundation Trust

Additional Sites

Lincolnshire Partnership NHS Foundation Trust; Black Country Partnership NHS Foundation Trust; Leeds Community Healthcare NHS Trust; Leeds and York Partnership NHS Foundation Trust; Dudley & Walsall Mental Health Partnership Trust; South Staffordshire and Shropshire

We look forward to conducting more interviews with young adults over the next couple of months!

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